• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Dr. Mikovits of the WPI to Host Live Q&A Session Regarding XMRV 22nd Jan

    Thanks for your response tee, I will have a look at powersurge.com. Also, I remember reading a paper by Dr Grubb, well known American POTS specialist (well known to people with POTS, I mean)where he said that POTS can be made worse (or resurface) during the menopausal transition. I don't...
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    Dr. Mikovits of the WPI to Host Live Q&A Session Regarding XMRV 22nd Jan

    Hi Dys, I know this whole thread is a broader conversation -- huge actually. But I'm new to this site and am slowly trying to understand some of it. I know that some of what is written would pertain to me but not sure what, yet. In other words I've got a lot to learn. Understatement. But a...
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    Another "I'm sorry" post...

    Hi Muffin, Thank you for your concern. Without going into it all I've tried living with family members here in Australia but it was worse. I have a difficult family and I have a difficult illness and it also makes me difficult and we just all don't mix very well. And no way could I afford...
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    R U Amygdalized?

    Hi CJB, I do exactly the same thing. I feel better when I'm doing it. When I revert to 'old habits' like watching the news and crime shows etc, I can feel the stress building up again. I don't read newspapers etc. I am careful of the movies I watch and the types of books I read. I have even...
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    Another "I'm sorry" post...

    Thanks Frickly, It's always good to be in a place where your problems are understood. :)
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    Is getting well about money????

    Dr Yes, I suspect a lot of the homeless people I see on the street in Australia are there because they are sick and despite govt allowances (pitiful amounts) can't afford to keep a roof over their head, food, or clothes on their back. Let alone have money to try 'treatments.' I'd also say...
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    Another "I'm sorry" post...

    Hi Raesiahna, Thanks for your post. I'm new here. I've been struggling to cook my husband's dinner each night. I maybe manage to supply him with dinner about 5 nights a week (admittedly I'll cook extra one day so he can eat it again the next night). I manage to do the laundry, keep our...
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    Dealing with weight gain

    Hi, I'm new to this forum but not new to illness. I have not been diagnosed with CFS. I'm from Australia and have been diagnosed with POTS -- a form of dysautonomia -- (three years ago -- but have had signs of it all my life and was misdiagnosed for nearly 2 decades with 'Panic Disorder.") I...