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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Googsta

    Simplified Methylation Protocol Revised as of Today

    Hi Rich Unfortunately I am experiencing the same problems with the Methylfolate as the Folinic Acid i.e severe depression. It seemed fine at first but after one week I had the same issues. I stopped the entire protocol Thursday (Saturday here) & am still having these negative effects. Taking...
  2. Googsta

    Simplified Methylation Protocol Revised as of Today

    Hi Rich, thanks for your response :). The only vegetables containing folinic acid I am aware of are lettuce, spinach, carrots and peppers? I am fine with all of these, even in large quantities. The only things I am particularly sensitive to are pumpkin, sweet potato, onion, garlic & citrus...
  3. Googsta

    Simplified Methylation Protocol Revised as of Today

    Hi Rich I began the Simplified Protocol about 6 weeks ago, but I have only managed to take the Folinic Acid for a week & a half. I expected agitation & a worsening of symptoms, however I ended up quite suicidal. After two days of crying & feeling numb I stopped the Folinic & the next day I was...
  4. Googsta

    Does anyone get side affects when taking Folate 800 mcg (as metafolin)

    I started Metafolin last week & have the same symptoms. I am just taking it every other day for now, usually if I know I can take it easy the following day. Crumbs are definately the way to go! I hope you find a solution that works for you ;)
  5. Googsta

    Simplified Methylation Protocol Revised as of Today

    After one or two doses of Metafolin I developed a painful lump deep in the back/right side of my neck. It was deep in, about 2cm in diameter, no redness or heat. The skin slid back & forth over it so I am certain it wasn't a skin eruption. Has anyone else had this happen? It's almost gone after...
  6. Googsta

    Best Fish Oils

    I agree they look like an excellent brand, but how are they better than the cheaper versions? Has anyone tried cheaper versus more expensive? Was there a substantial differance?
  7. Googsta

    Input requested on possible changes to simplified methylation protocol

    Same here Junie. Rich said: In that case I figure I could just go ahead with Solgar Metafolin instead? I already have some here. Holistic Health has been out of Methylmate B for way too long.
  8. Googsta

    earworm torment (a.k.a. auditory imagery loop)

    Agreed, torture is no exaggeration ;). The only thing with the Methylation Protocol is the symptom gets pretty intense at first so you really need to be able to cope with it. I have a few earworms floating around at the moment but I'm sleeping well & feeling calm despite it (so far lol). I'll...
  9. Googsta

    Best Fish Oils

    I have been taking the Natures Way brand 2000mg x 2 for 6 months with no noticeable differance. I have seen a lot of rave reviews of the Nordic Naturals products but they are quite pricey, anyone tried them? Does it really matter which Fish Oils you take?
  10. Googsta

    How Much Potassium to begin with?

    This is exactly my problem, I am not absorbing enough of anything from my diet. I have no remarkable gut or intestinal issues to account for it either. Can I just ask that people refrain from making this discussion personal, it's not pleasant to ask a question regarding a supplement & be told...
  11. Googsta

    Earning money through Ebay

    Yeah getting to the post office could be difficult. You can buy the pre-paid satchels & have some on hand (that's where your float money comes in). And there is a section where you say how often you post, 'estimated delivery time.' If you can't get out very often I would add an extra note onto...
  12. Googsta

    Proton pump inhibitors for Gastritis

    ((HUGS)) Justy, you really must feel like the wind has been knocked out of your sails, hang in there :hug: I have been on Nexium since I had a Gastropy 7 years ago, my ME/CFS relapses & remits either way. I haven't had any dizziness that can be attributed to Nexium. It was suggested a while...
  13. Googsta

    Earning money through Ebay

    My husband & I have been selling on ebay for two years now just to supplement our pensions. Unfortunately when I am unwell we stop selling as it's just too complicated for me to write up ads & that's my part of the partnership. However, when things are better & depending on what we can find to...
  14. Googsta

    How Much Potassium to begin with?

    Thanks Ema, I am not able to get to my doc for a week or so & was concerned which is why I asked. I'll have him run frequent labs to keep an eye on things. I'll start out adding more to my diet & see how that goes, but my body doesn't seem to absorb much of anything from food. I recall...
  15. Googsta

    Australian Specialists including Neurologists

    News on Dr David Prentice, Neurologist (see first page for details). Another patient went to see Dr Prentice last week & had mixed results. He did prescribe Endep (Amitrypytylene) & ordered a brain MRI. However, he also asked whether they had seen a psychiatrist since their diagnosis. It's...
  16. Googsta

    How Much Potassium to begin with?

    Thanks L'engle, I might just hold off on it until I start the B12's then as I don't think I have any symptoms of low potassium at the moment. ;)
  17. Googsta

    How Much Potassium to begin with?

    I just started the simplified protocol, I am up to 2 x Neuro Health Formula & 1 x Lecithin. I hope to introduce some B12's next week. I started one 99 mg Potassium Gluconate but am wondering if I should be spreading it out over the day? Is that dose enough for the time being? Should I just...
  18. Googsta

    Results from my methylation treatment - week by week

    Hi Redo, have you ever had Spirometry tests? Perhaps discuss it with your doc ;)
  19. Googsta

    $5000 Every Month - Australia

    I have wasted so much time & energy trying to find the correct link to the nomination forms for this comp, none of the above links take you to the form anymore :mad: I have emailed 3AW to ask for a link so hopefully it will pan out, if anyone else has the link please post it here! It would be...
  20. Googsta

    would it be rude to take info into doctor to read?

    I hope you get some answers Hurting ;) I have had success sending my Neurologist information before a visit, I think he may have thought I was a wee bit cheeky but he read it :). I wouldn't send anything to someone I see in the public sector though, they are so short of time already. In that...
  21. Googsta

    low grade fever

    I agree with Xrunner. I would be more concerned with what is causing your low-grade fever, especially following a respiratory illness. (Although I believe it can just be another fun ME/CFS symptom) If your doc is concerned about pneumonia he should order a chest x-ray. Research I have read...
  22. Googsta

    MSG sensitivity

    I don't doubt that at all Asklipia, but he only had it occasionally (usually if he had a cold or flu) which was why it was so easy to nail it as the problem ;).
  23. Googsta

    Vasopressin/ADH ... My Story

    Just to update others as you have removed your signature - you say have been cured since May, this year i.e one month ago. I do not consider someone who continually needs medications as 'cured'. The correct term for that would be successful treatment, which is great. I just began walking a...
  24. Googsta

    Week Long EEG

    No challenges. I was expecting them but for some reason they didn't do it. I am an insomniac at the best of times so I'd probably need to be forced to stay awake for two days to get any result. I have also heard they starve you as one of the challenges (fun lol). If anyone has MCS I would...
  25. Googsta

    MSG sensitivity

    I mostly have GI issues with MSG. And it takes a long time for things to calm down again. My husband does not have ME/CFS & his reaction to it is even worse than mine. He has suffered from regular migraines, including clusters since childhood which we have discovered is due to MSG in his...
  26. Googsta

    Guardian article - suicide of ME sufferer

    :( I hope articles like this also help people understand the essential part Carer's play & how much suffering they go through trying to help & take care of us with no support. So sad. Well summarized IMO. :( 60 pages is ridiculous, it's nothing like that here, less than 20 & the questions are...
  27. Googsta

    Guardian article - suicide of ME sufferer

    :( I hope articles like this also help people understand the essential part Carer's play & how much suffering they go through trying to help & take care of us with no support. So sad. Well summarized IMO. :( 60 pages is ridiculous, it's nothing like that here, less than 20 & the questions are...
  28. Googsta

    Neck pain, back pain and what to do?

    I have found this site extremely informative, they have short videos too including procedures that have already been mentioned above. Also note they have a pain forum. Here are some helpful links on this site: Degenrative Disc Disease...
  29. Googsta

    Hospitalization and CFS/FM

    Here is a great link for anyone requiring Anaesthetic for surgery http://www.anapsid.org/cnd/drugs/anesthesia.html I hope they are able to help you Gknee :hug:
  30. Googsta

    $5000 Every Month - Australia

    Hi guys, I thought I'd start another thread & condense it as best as possible so it is a bit easier on our weary brains :confused: There are only a few more days before nominations begin for June so I thought I'd get in early so we can all be prepared. Don't forget that if your charity wins...