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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. S

    Conversing With Professor Simon Wessely- Part 1

    Very very interesting! :Sign Good Job: cfssufferer!!
  2. S

    VIP Dx Culture Test Poll For A LATENT Infection

    I did the same and tested negative.
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    People Who Tested Negative to the VIPDx tests

    Marguerite Ross also wrote: "We will run the new improved culture test on your specimen. Samples will be banked. When we get our serology test licensed and validated through WPI, we can send you a release to have your banked sample tested. Please check back in the spring as to when this test...
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    People Who Tested Negative to the VIPDx tests

    Marguerite Ross, Director, Marketing & Client Relations, VIP Dx / RedLabs, wrote this to me in an email on the 18th of January: "If we get the antibody, we may be able to offer it at a reduced rate to those who have already been tested and had a “none detected” result. If you test positive...
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    XMRV Positive(Latent)Negative(Active)

    Thank you. I found some information here: http://www.forums.aboutmecfs.org/showthread.php?940-xmrv-needs-4-tests-(Nov-09) To "link" XMRV to CFS, is it then enough to just take the PCR/culture test from VIP? Shouldn't one also take the antibody test? Perhaps no treatment is needed if just the...
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    XMRV Positive(Latent)Negative(Active)

    Thank you for clearing that. Can you please explain the terminology, and what each test means? :innocent1: Do you know which test will find XMRV antibodies in the plasma?
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    XMRV Positive(Latent)Negative(Active)

    I have yet another question: According to the Science paper, 67% tested positive for XMRV: "Studying peripheral blood mononuclear cells (PBMCs) from CFS patients, we identified DNA from a human gammaretrovirus, xenotropic murine leukemia virusrelated virus (XMRV), in 68 of 101 patients (67%)...