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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Article: Dr. Nancy Klimas Forms Neuro-Immune Institute on ME/CFS at Nova Southeastern University

    :cheshire: OMG:victory: OMG:Retro biggrin: I am so excited..can you tell?:tongue:
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    yeast candida causing sinusitis, anyone??

    Dont know yet, she is in transition to another university, hope to find out soon!
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    yeast candida causing sinusitis, anyone??

    Me Too! Dr. Klimas put me on a 6 month course of antibx. taken once a week. My gamma gobulin levels are low, and when i see her again for bloodwork she will re test for levels and if still low will most likely receive gamma gobulin IV/shots. She feels it is a low simmering...
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    Klimas is GONE from UM !

    Could not have said it better!
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    Klimas is GONE from UM !

    Easy for you to say Cort.....LOL :cheeky grin: Im without a Doctor! Can you at least say if I need to get out my credit card to pay privately or will I be excited with good news? :cheshire:
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    Klimas is GONE from UM !

    Have no idea how or when she left? Chris, I hope its only a dream..lol
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    Klimas is GONE from UM !

    I just received a letter today informing me that Dr. Klimas is no longer at UM and will not be seeing patients. I am screwed, and saddend. A Dr. Lauren Fine is taking her place. Anyone else get a letter?
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    Immunovir/isoprinosine in Australia

    SORRY...I am stealing this post..Im so upset I cant remember how to start a new post, seriously..again, sorry I just got a letter in the mail informing me that Dr. Klimas is no longer be seeing patients at UM! Anyone else hear this? A Dr. Laura Fine is taking her place...I am screwed.
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    New Lyme disease culture test now available!

    Does anyone know the name of the Lab in Sarasota Florida that Dr. Cheney uses to test for Lyme? I remember that this is the only lab he would use. A dear friend has "maybe" Lyme. Thanks everyone.
  10. C

    Miracle swim cure

    Dr. cheney encourages all of his patients to "hang" vertically in the pool, apparently drains the lymph system, it really works for me when i do it. It may be the water pressure helping you?
  11. C

    VIP Dx Culture Test Poll For A LATENT Infection

    :Sign Thanks:thanks Helen, i was looking forward to rubbing the test results in a few peoples faces :innocent2:
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    VIP Dx Culture Test Poll For A LATENT Infection

    Tested negative through WPI culture I got my test results a few days ago, and feel soooo disappointed:Retro confused: I guess I needed the validation, even tho Im classic CFS including all the tests that CFS docs had at their disposal prior to xmrv testing. Did I read somehere that its likley...
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    The BIG CHASE: funding US ME/CFS non-profits

    Dr. Klimas has a fund/charity called "The Morton Fund @University of Miami", named after someone who died from CFIDS. She said she has stretched that small fund to do many productive things, IE: buying lab equipment for cfs reasearch that the university wont buy, I cant remember the other...
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    Cheney Newsletter

    :Sign giggle:haha... that was my first thought when I got that newsletter :Retro mad: irritated again at poor Dr. Cheney.
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    Comment by 'calzy' in 'Breaking Out!'

    :thumbs up: Cort said it beautifully
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    Cheney's Latest Newsletter

    Its called DESPERATION.......its the pay for website that upsets me.
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    Cheney's Latest Newsletter

    Im just gonna say it...He pisses me off with this s@*t...I spent 50k, my life savings at his office...he did some great things for me, but I think he looses his credibility with this $$$$$$ driven practice.
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    Eradicating HMRV (or whatever they name it next)

    2 days on LDN and 2 days in bed...I knew it wasnt for me
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    My appointment with Dr. Klimas was wonderful

    Only at her practice at the University of Miami. However she has a 4 year waiting list. Her partner Dr. Rhe at the University, has openings, and I hear she is wonderful. Dr. Klimas trained her. Remember, she has 2 pratices, one private (no medicare) and at the University.
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    My medical alert bracelet

    For those of us who want/need medical Id bracelets, check out "Laurens Hope" (google) she has beautiful bracelets.
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    My appointment with Dr. Klimas was wonderful

    I LOVE her..she is like your very own bff.
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    Bikram Yoga

    You obviously dont have CFS! lol.....My 210 lb grown son (who works out daily with weights) got his a*s kicked in by this yoga and only did 2 classes.
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    Obtaining the ARVs now/soon?

    Just received my test kit from VIP..Dr Klimas says she is starting a trial, dont know what meds yet. But she sounded pretty confident on knowing what they are. I go back in Dec and if XMRV+, I will consider being on her trial, she said by the time the insurance companies catch on, I could have...
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    Article: Dr. Cheney on the XMRV International Workshop

    so should I be worried about the blood draw when Im sending in my blood for the xmrv cuulture? Does he mean the collecting process with the blood draw at a local lab? :Retro confused:
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    Article: A Time To Act!

    Do we have a target date for publication? I donated a while back. Is the holdup $? If so, Im sure all of us can rally and set a fire under familes and friends feet.:winking: Im not too proud to beg:Retro biggrin:
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    From the 1st annual XMRV conference

    :victory::victory:Bravo pine108kell...U of Pittsburgh is cutting edge for medical treatments and discoveries! Can you tell Ima Pa girl? :winking: