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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. K

    Autoimmunity Publications

    Sorry if this kind of thread has been started elsewhere - the Mods can merge/delete as appropriate. The immune system : I don't find this an easy area to get into at all. I'm assuming there are others out there in a similar predicament. If that's the case, then I draw your attention to this...
  2. K

    Psychiatry : The Infallible Profession

    Just accept that you're Psychiatrically ill. These people know what they're talking about. Don't they ? http://en.wikipedia.org/wiki/Rosenhan_experiment :eek: Well, you've gotta laugh.....
  3. K

    Astounding Norwegian research breakthrough with Rituximab can solve CFS mystery!!!

    You are 100% correct, Esther. Thank you for curbing my enthusiasm, seriously ! It is sensible to be cautious - I think I've been so down about the "XMRV" business that I am perhaps treating this news a bit too enthusiastically. Yes, replication by groups elsewhere : that's most definitely the...
  4. K

    Astounding Norwegian research breakthrough with Rituximab can solve CFS mystery!!!

    Esther12, seriously, mentioning this research in the same sentence as the PACE trial.....come on ! These are cancer specialists who made a chance discovery and have followed it up in the most professional manner possible. The PACE trial - I wouldn't use it as toilet paper.
  5. K

    Astounding Norwegian research breakthrough with Rituximab can solve CFS mystery!!!

    Hi Currer, I think it would be wise to keep the subject of "XMRV" away from the Rituximab one. At the time of the conference you mention, the Norwegian researchers were not aware that Dr Mikovits' research would be the subject of investigation in the future. Incidentally, Dr Mikovits said it...
  6. K

    This Requires A Very Good Explanation

    Apologies if posted elsewhere. I'm not a fan of this blogger but this is potentially serious. http://scienceblogs.com/erv/2011/09/xmrv_and_chronic_fatigue_syndr_29.php
  7. K

    Comment by 'KFG' in 'When PR means Public Relations, not a mythical rebirth part one'

    • KFG
    • Blog entry comment
  8. K

    Comment by 'KFG' in 'When PR means Public Relations, not a mythical rebirth part one'

    What is needed above all is some hardcore rigorous science to blast away all the crap surrounding this illness at present. I had hoped at one point Jonathan Kerr's work was going to achieve it. Unfortunately, in my opinion, some of the highest quality science seen in "CFS" research to date has...
    • KFG
    • Blog entry comment
  9. K

    Reagent Contamination Study

    http://www.plosone.org/article/info:doi/10.1371/journal.pone.0019953 Apologies if this is posted elsewhere.
  10. K

    The State of Play ?

    "In conclusion, the fundamental question of whether XMRV is really an infectious agentcirculating in the human population is still unresolved. This question will not be settled until reproducible assays for the virus are established and validated; in turn this will require exchange of samples...
  11. K

    New WPI paper

    http://www.ncbi.nlm.nih.gov/pubmed/20842203 Anyone got the full paper ?
  12. K

    CDC XMRV Retrovirology Study on CFS Published

    http://www.retrovirology.com/content/7/1/57 (I changed the title to add keywords to it)
  13. K

    A Story To Give Everyone Hope

    http://www.mja.com.au/public/issues/183_11_051205/van11000_fm.html This is a fantastic story showing how two scientists overturned decades of medical wisdom through trusting their instincts and not allowing sceptical colleagues and vested interests to stop the truth coming out. They eventually...
  14. K

    Xmrv does exist in europe. And it's old news......

    Two positives - one Prostate Cancer, one Healthy Control. Can people please stop saying there's no XMRV in Europe..... J Clin Virol. 2008 Nov;43(3):277-83. Epub 2008 Sep 27. Prevalence of human gammaretrovirus XMRV in sporadic prostate cancer. Fischer N, Hellwinkel O, Schulz C, Chun FK, Huland...