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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. K

    Urgent, patients need to contribute to research

    www.meandyoufoundation.no In the end of 2012 the norwegian government denied further economic support of research into biomedical cause of cfs via Fluge and Mella at Haukeland hospital in norway. To my knowledge, their study published in 2011 had results of which there havent been anything...
  2. K

    Fluge and Mella get 340 000 $ for bigger rituximab study 2012

    Health minister of norway give 340 000 $ earmarked for Fluge & Mellas specific research. Anne Grethe Strm Eriksen also open up for more money in the future. The two oncologists hope to run a larger rituximab study with 120 people from fall 2012. In norwegian ...
  3. K

    Researchers find molecule pd1 is critical in autoimmunity

    Researchers in the Faculty of Medicine & Dentistry at the University of Alberta have made an important discovery that provides a new understanding of how our immune system "learns" not to attack our own body, and this could affect the way doctors treat patients with autoimmune diseases and...
  4. K

    Norwegian doctors are planning larger study with Rituximab

    Doctors want another bigger national Rituximab study The Bergen based doctors behind the norwegian ME breakthrough are now working on executing a larger study with far more patients. If the financing gets in place, a study of this kind could be an important step towards a treatment...
  5. K

    Astounding Norwegian research breakthrough with Rituximab can solve CFS mystery!!!

    Derek Enlander and David Bell is attempting to replicate the retuximab study in the us. Very good news. Here is Bells comment on the initial study http://www.youtube.com/watch?feature=player_embedded&v=petcvu53S0w
  6. K

    Faecal transplant eases symptoms of Parkinson's (and CFS)

    hey guys, I too got very excited about this method I am thinking of trying it but its not something you get at every hospital you know.. There is one doctor in norway who have used it on clostridia colitis patients with very good effect. He had used it more experimentally on ibs patients...
  7. K

    A New Term! - "Bodily Distress Syndrome"

    Unbelieveably stupid...... beyond comprehension Who is this guy ? Think he invented the wheel or what? " I will now attempt to regroup all types of human disease and call it the feeling sick syndrome" "This will help facilitate research and delivery of evidence based care"
  8. K

    NICEGUIDELINEBLOG = study points 95% PWCs have autoimmune disease

    And he replied they already aware of the paper. They are happy about all interest and think it could be a joint effort solving this mystery together.. great guys..
  9. K

    Gulf War Syndrome, 8 out of 11 victims tested have incredibly rare pituitary disease

    International renowned hormone specialist Dr. Thierry Hertoghe has no special interest in CFS per se, but says the picture in these patients are very indicative of pituitary damage... interesting..
  10. K

    NICEGUIDELINEBLOG = study points 95% PWCs have autoimmune disease

    Ok its sent :) Doesnt this point to what Ken Lassesen has been saying all alone. The microthrombosis theory. Chronic low level hypercoagulation in this disorder. This would be an effect of the anti cardiolipin antibodies and could in turn produce many of the cfs symptoms, hypoperfusion, memory...
  11. K

    Researchers turn off allergy in mice by attaching allergen to blood cells

    http://www.gizmag.com/peanut-allergy-treatment/20279/ check this out
  12. K

    Fluge and Mella answers about Retuximab on netmeeting

    The time I saved by just putting it in google translate I now have to spend explaining people hollow duck and open sailing .. :D
  13. K

    Fluge and Mella answers about Retuximab on netmeeting

    Hi, yea google translate I was abit quick to share it... :) About that paragraph, It means alot of other pharma companies have drugs with similar mechanism of action in the pipeline
  14. K

    Fluge and Mella answers about Retuximab on netmeeting

    Can treatment be made at home for patients who are extremely shady? Hello Birger, Currently, treatment must take place in hospitals because it is an intravenous infusion and we will have allergy emergency. This may change in the future with new formulations of such drugs may be administered...
  15. K

    Astounding Norwegian research breakthrough with Rituximab can solve CFS mystery!!!

    The study is very well done. I saw the slides. These guys are oncologists, not crystal wielding naturopaths. (not that theres anything wrong with those) They went straight for a large double blind study which is expensive and resource demanding. Their methology seems very good. They wanted to do...
  16. K

    CFS is autommune disease affectiong sensory nervous system says norwegian researchers

    http://www.tv2.no/nyheter/innenriks/english-version-norwegian-research-breakthrough-can-solve-cfsmystery-3615631.html New study coming out soon. Study is double blind and results are replicating the initial one. The new one is with 30 patients. Some have had lasting improvement of...