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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. S

    Interpretation of KdM results

    Hi, my daughter was tested by KDM in September, we are starting to receive her results. Below, I have written some of her test results that to some degree resemble yours: CD 57: 26 (reference range: 60,00 - 360,00 cells/μl) Ammonia in serum: 3,98 (reference range: 0.28 – 3.03 ratio to normal...
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    Nagalase levels

    My daughter`s Nagalase level before Gcmaf was 0,97. Reference range: 0,32 - 0,95, so just a little above maximum of reference range. She will be tested again on 8th August.
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    MTHFR Polymorphism test.

    Thanks a lot for your replies. I think after studying the replies that my daughter is 677CT/1298AA which as far as I understand means that there is not a big risk of folic acid getting low. This fits with an Organix Urine test which she did when she was very ill in 2003, before she...
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    GcMAF, inflammation and individual response

    In response to this post:http://forums.phoenixrising.me/showthread.php?6019-GcMAF-for-XMRV-Gc-protein-derived-macrophage-activating-factor-anyone-taking-it&p=190304&viewfull=1#post190304 Rrr - thank you for the response - my daughter has now decided to lower her dose of Gcmaf from 0,50 to...
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    MTHFR Polymorphism test.

    Hi Emootje My daughter has: MTHFR 1298A/C Polymorphism: High activity MTHFR 677C/T Polymorphism: Moderate activity I also don`t know how to interpret the test - did you find out?
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    GcMAF for XMRV--Gc protein-derived macrophage activating factor--anyone taking it?

    Thank you Sushi and Girlinthesnow, I have now entered her data in the spreadsheet and have looked at the data there - I am thinking about the combination of being a high responder and having a quite high C4a before she started Gcmaf, and looking at others with the same profile. Maybe it would do...
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    GcMAF for XMRV--Gc protein-derived macrophage activating factor--anyone taking it?

    Hi, this is my first post in this forum. My daughter is 28, has had ME/CFS since 2001, and I am writing on her behalf. She started Gcmaf 5 weeks ago. We are slowly reading through this great thread, and thought we would add her experience and ask a question about genotype. She has been a...