• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. L

    ***VIP DX ANNOUNCEMENT*** Serology test is now available!!

    ARV's shouldnt affect serology. dr. lombardi told me today
  2. L

    Chronic Lymph Node Pain for over 18 months

    hi hoosier..do you have CFS? i think it could be a chronic infection....
  3. L

    Starting Raltegravir

    autonomic response testing?? joey..i tried to google this but imy fog is really bad. how can they determine which drugs will be better for you? do they give you the drug and then test certain things? thank you sue
  4. L

    CDC replication study delayed in order to prepare a press release?!

    there is already an XMRV+ forum...it looks like this one but maybe created by someone else? http://www.xandxmrv.com/forum/forumdisplay.php/1-XAND-Forum-and-XMRV-Forum
  5. L

    VIP Dx Culture Test Poll For A LATENT Infection

    far as i am concerned, we are all positive. dr. mikovits (bless her heart) told me she is convinced i still have it but its in my tissues. i tested neg on everything - includiing the older antibody test. there is a newer test now but it's not commercially available yet. ugh....i hope she is...
  6. L

    demeirleir

    Referat fra Prof. De Meirleir og Dr Petersons XMRV-foredrag i Madrid 26.05 Rutt @ 14:50 *Yesterday we have gone to Madrid to hear Dr. Dan Peterson's lecture. It was an all morning session about XMRV, and the first to talk was Dr. Dan Peterson. He shared with everybody some of the...
  7. L

    Cfs in china

    http://sites.google.com/site/newhivaidslikeviruschina/
  8. L

    MONTREAL STUDY - important - please read - CANADA

    As you all know, dr. jolicoeur in montreal has done an XMRV study which has yet to be presented. i communicated with him and asked if the rumors are true that they could not find XMRV in the CFS samples. He declined to reveal that information. I asked if he used methods other than PCR and he...
  9. L

    Comment by 'ladybugmandy' in 'Grading Ampligen - A Mid Term Report Card'

    very thankful for this post. if ampligen takes a long time to act on cognition and energy, it seems safe to assume that any treatment, including antiretrovirals, would take a while, too....which gives me hope since i am on them! all the best sue
  10. L

    Genetic Predictors of Raltegravir Penetration Into Cerebrospinal Fluid

    study worth watching..... http://clinicaltrials.gov/ct2/show/NCT00729924
  11. L

    Raltregravir Question !

    Hi all. I have been reading the research articles but am still unsure about something: is a higher concentration of Raltegravir required for XMRV, than it is for HIV? Or is it lower? One person told me you would need more Raltegravir for XMRV but I dont see that in the articles... Thank...
  12. L

    Chronicle of Dr.Mikovits conference in Spain

    Europe conference? hi all. was there a european virus conference this past week? my doctor was gone to europe and so was dr. mikovits i think.... most of the ID docs were in europe i was told at my local hospital. thanks sue
  13. L

    Twitching

    Hello. does anyone with CFS experience muscle twitching or finger and toe twitching? thanks Sue
  14. L

    Comment by 'ladybugmandy' in 'Virologists on XMRV'

    maybe you need a herpes virus to co-infect at the same time as XMRV.....
  15. L

    Comment by 'ladybugmandy' in 'Petition for Panorama Investigation, all signatures welcome!!'

    will signatures from outside the UK mean anything?
  16. L

    Comment by 'ladybugmandy' in 'The safety of haart'

    why wouldnt you trust polio vaccines? they are trying to prevent people from getting polio so they can eradicate the virus. they are doing it in indian villages too.
  17. L

    Comment by 'ladybugmandy' in 'A Light in the Darkness: Good News Ahead for XMRV?'

    if people continue to deteriorate with no help in the UK, some of us who can, should perhaps volunteer to host a UK CFS patient. i would do it if my situation improved. cort..may i ask why you doubt you have XMRV? thank you sue
  18. L

    Comment by 'ladybugmandy' in 'A Light in the Darkness: Good News Ahead for XMRV?'

    somewhat old news but dr. jolicoeur in montreal applied for a grant a while ago re: xmrv (i think) but he never answers my emails anymore..
  19. L

    Comment by 'ladybugmandy' in 'A Light in the Darkness: Good News Ahead for XMRV?'

    another amazing read..dont know how you do it but thank God you do
  20. L

    My AZT + RAL Trial

    xxxxxxxxxxxxxxxxxx
  21. L

    Dr. Enlander XMRV

    hello. i just heard from the yahoo group CFSExperimental that all of Dr. Enlander's patients were negative for XMRV. I dont know if VIP used PCR and/or culture and/or serology for Enlander's samples. i heard only one patient of Levine's tested positive...again, I don't know what kind of...
  22. L

    Comment by 'ladybugmandy' in 'Amped on Ampligen'

    damn. this is good. i wonder what it would be like to feel like "me" after 18 yrs. i forgot what i am even really like. congratulations to you.
  23. L

    ladybugmandy

  24. L

    In Depths of Despair

    dreambirdie: have you seen a cardiologist? dr. lerner, a CFS specialist, prescribed Atenolol for me when i started to have heart palpitations. it helped a lot. love sue
  25. L

    XMRV and cancer

    does treating XMRV with effective antivirals prevent or greatly reduce the likelihood of cancer (leukemia, lymphoma) developing? i was reading about the feline leukemia virus and apparently, antiviral therapy does not prevent the cat from developing cancer. any ideas? thanks sue
  26. L

    XMRV and RNase L

    hello. i was wondering if anyone out there had their RNase L activity and RNase L ratio tested and how this might correlate with your XMRV results. thanks sue
  27. L

    Dr. Bateman's webinar Jan 18

    please delete i cannot delete this. someone please delete. thanks
  28. L

    Comment by 'ladybugmandy' in 'XMRV test now or later?'

    i cant read some of the posts...the icons are covering the words.
  29. L

    I tested negative to both tests

    both PCR and culture negative. can barely walk. am in constant agony. may begin AZT next week anyway. antibody test in 3 - 4 months.