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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Spring

    'Science to patients' web seminars with Dr. Shepherd

    The series 'Science to patients' from the Dutch ME/cfs Association continues with 8 web seminars with dr. Charles Shepherd. See the Youtube channel for a total of 35 web seminars with prof. dr. De Meirleir, prof. Dr. Visser and dr. Nigel Speight. After dr. Shepherd there will be web seminars...
  2. Spring

    'Science to patients' with pediatrician Dr. Nigel Speight

    Here are the web seminars with dr, Speight about ME in children 29-32. The subtitles are Dutch but you can listen.
  3. Spring

    Methylation/detox and antidepressant withdrawl

    Hello, I am going trough lyme treatment right now and I have a lot of herxheimer reactions. I have been trying to get my methylation going so my body can get rid of the toxins. But all attempts failed because all these supplements wash away my antidepressant. I go into acute withdrawl. I've...
  4. Spring

    'Science to patients' with pediatrician Dr. Nigel Speight

    It sure is sad, but it might be of help to anyone. Especially as there is not much particulary for kids with ME. Thank you for sharing!
  5. Spring

    'Science to patients' with pediatrician Dr. Nigel Speight

    Broadcasting dr. Nigel Speight Week 2: January 7th , web seminar 28: Interview with Dr. Nigel Speight about his involvement in law suits regarding children with ME. Week 3: January 14th web seminar 29: What is ME and what is CFS January 14th web seminar 30: Criteria for ME Week 5: January...
  6. Spring

    'Science to patients' with pediatrician Dr. Nigel Speight

    The series 'Science to patients' of the Dutch ME/cfs Association (ME/cvs Vereniging) continues in January with web seminars with dr. Nigel Speight. The first episode will be an interview with doctor Speight about his involvement in child protection cases due to ME. He won 28 out of 30 cases in...
  7. Spring

    'Science to patients' web seminars continues

    See the broadcast schedule for the new video's in January 2014 with Dr. Nigel Speight and Dr. C. Shepherd. They will be followed by Dr. Newton and Dr. Jason. http://www.me-cvsvereniging.nl/broadcasting-science-to-patients-2014
  8. Spring

    'Science to patients' web seminars continues

    And here are the missing web seminars of Visser and one of a Dutch neuropsychologist, Dr. Vollema:
  9. Spring

    'Science to patients' web seminars continues

    To make this topic complete, here is the link to the thread with all 20 web seminars of De Meirleir. In two week there will be two new video's of Visser released. http://forums.phoenixrising.me/index.php?threads/web-seminars-with-prof-k-de-meirleir-with-english-subs.21978/
  10. Spring

    'Science to patients' web seminars continues

    The project 'Science to patients' of the Dutch ME/cfs Association (Me/cvs Vereniging) continues after the 20 seminars of Prof. K. De Meirleir. The first web seminar of Prof. dr F. C. Visser is translated and online now. He is a Dutch cardiologist who is specialized in ME. There will be 6 web...
  11. Spring

    NASA is looking for volunteers to test their beds

    Nice job! Just heard this week that people with ME(cfs) dont get decubitus (pressure ulcers) as other people who are in bed 24/7 because the skin has less blood flow. Another reason for Nasa to turn us down. Or not :-) Not that anyone knows...
  12. Spring

    Web seminars with Prof. K. De Meirleir with english subs

    Thanks for sharing! There will be three more. After that we will continue with other (international) ME specialists.
  13. Spring

    Bartonella and Cat Scratch Disease

    KDM is looking into Bartonella very closely. He gets people tested for a lot of species, unknown to be pathogenic in humans. A publication would be on it's way. In his 12th web seminar, which will be available in English in two weeks, he is talking about 32 species and the one found in his...
  14. Spring

    Llewellyn King interviews Dr. Kenny De Meirleir: ME/CFS Alert, Episode 42

    Sushi: Unfortunately once a video is on Youtube you can't change it. It is mentioned below the video.
  15. Spring

    Llewellyn King interviews Dr. Kenny De Meirleir: ME/CFS Alert, Episode 42

    "Hi guys, does he say "itercellular????" I understand "intracelullar", but of course English is not my fist language. The thing is that the normal word to use would be "extracelullar" instead of "intercelullar", as opposed to "intracellular"..." serg1942: I talked to DML last Sunday at our ME...
  16. Spring

    Llewellyn King interviews Dr. Kenny De Meirleir: ME/CFS Alert, Episode 42

    The caption is wrong. Unfortunately it can't be changed. It will be mentioned below the video.
  17. Spring

    Llewellyn King interviews Dr. Kenny De Meirleir: ME/CFS Alert, Episode 42

    Also there he is saying 'intracellulaire'. I will ask De Meirleir in the next chat or on the Dutch ME day event on 12th May if he always means intracellular or if he also talks about intercellular infections. I guess he emphasizes 'intracellular' because that makes clear you need antibiotics...
  18. Spring

    Llewellyn King interviews Dr. Kenny De Meirleir: ME/CFS Alert, Episode 42

    He always speaks about 'intracellular' infections or in Dutch 'Intracellulaire'. Never heard him talk about 'intercellulair' infections.
  19. Spring

    Llewellyn King interviews Dr. Kenny De Meirleir: ME/CFS Alert, Episode 42

    More recent interviews with Kenny are to be found here: http://forums.phoenixrising.me/index.php?threads/web-seminars-with-prof-k-de-meirleir-with-english-subs.21978/ #7 is about the immune system There are 20 in total but right now 7 with subtitles and there will be more translated soon!
  20. Spring

    Web seminars with Prof. K. De Meirleir with english subs

    And here are seminar 6: ME and Hormones and seminar 7: ME, the Immune System and several Virussen We hope you'll enjoy them!
  21. Spring

    KDM and sleep

    Sorry cant qoute on this device: 'Interesting what KDM says about sleep and how infections and immune system disrupt our ability to sleep. I also thnk something gets injured/broken from the initial infection too. At the end of the blog he mentiones antiseizure meds he finds help people to sleep...
  22. Spring

    Borrelia – In the Lymelight

    Back to Borrelia, it was very interesting what I think dr. Ostfeld said at the TBDA forum this week. That Borrelia changes its outer proteins over time in your body. So you wont make the 'typical' antibodies anymore, but maybe other antibodies. Thought he said they were looking for this in...
  23. Spring

    Web seminars with Prof. K. De Meirleir with english subs

    And to be complete so far, here is also number 5 about ME and Pain.
  24. Spring

    Borrelia – In the Lymelight

    In the Netherlands I know at least 20 patients formerly diagnosed as ME/cfs who tested positive for Lyme on different lyme tests. There are also some who were negative on all kinds of testing. But if they have very low CD57 clinical diagnosis of lyme still can be made. De Meirleir talks...
  25. Spring

    Web seminars with Prof. K. De Meirleir with english subs

    Subjects of the seminars: 1. Is ME and/or CFS a disease? 2. Is it possible to diagnose ME/CFS? 3. Is ME a hereditary condition? 4. ME and sleep disorders 5. ME and pain 6. ME and hormones 7. ME, the immune-system and verious viruses 8. ME, the blood-circulation and the brain 9. ME and...
  26. Spring

    Web seminars with Prof. K. De Meirleir with english subs

    Some more information about the project from the letter sent by the ME/cvs Vereniging: We would like to bring to your attention our participation in a beautiful scientific project called Wetenschap voor Patiënten (Science for Patients). In this project web seminars with scientists are filmed...
  27. Spring

    Web seminars with Prof. K. De Meirleir with english subs

    Hi Snowathlete and others, Glad to see the work is appreciated. There are 10 volunteers involved in making the transcripts, translating, correcting and subtitling. I will place some more info about the project later. Best wishes, Spring