• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Question to all

    Sallysblossoms!!!!! tx u so much for that, that is a really cute birdy picture.... I will take what you said into consideration for sure.....
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    Question to all

    I'm so leary about taking drugs... Valcyte... hummm I know cyte means cell in the medical world.... Val cold mean virus? How do you get it? Sorry I didn't write sooner I was out to CA for my 21 yr old niece's funeral.... Talk about being dragged out... So what sort of doctor said, yes you...
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    Dr. Lapp NC

    Sorry just getting back to you, I had to fly out for my niece's funeral in CA... I'll call and ask for Pam, thank you so much.
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    My symptoms

    Okay, sorry just getting back... At a funeral for my niece in CA
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    My symptoms

    I read what you wrote and thank you Sallyblooms...
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    Dr. Lapp NC

    I just wrote CFS/ME speacialist Dr. Lapp (well known) to please take my letter seriously... I hope he writes me back, or else... I don't know what I'm going to do
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    Question to all

    John: I think it's great that you've found a doctor that listens to you... What are they doing for you? Supplements? diet?
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    Comment by 'Birdy' in 'Shadow People'

    Written beautifully, we are great people... We are over achievers most of us.... I know I am.... We're workers. We are hidden in this pale shadow it truly is a tragedy.
    • Birdy
    • Blog entry comment
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    Question to all

    Hi I'm new, recently stated my hell story non "introduce yourself, and listed my symptoms" on "symptoms" list. I've got a question.... That is, where do I go, who do I see for help when I've gone everywhere else w/no solution or help at all. I really do need some type of support to let me...
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    My symptoms

    -Exhaustion upon doing anything, even not doing anything -Muscle weakness (jelly legs) -Racing heart beat -Labored breathing -Neck pain -Shaky left hand -Insomnia severe -Migraines -Cogfog -Trouble finding words -Low blood pressure -Immune system compromised - I leave come back and pay for...