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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. D

    Has anyone here got Small Fiber Neuropathy? - Question

    Hi, I have SFN too. Wich supplements do you use for your SFN ? Thanks Daniele
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    Hydroxocobalamin and erectile dysfunction

    Good morning Pyrrus, sorry for my insistence...just wanted to know if what you explained me is valid even if I saw decreasing NO level in my blood by testing ...after taking Hydroxocobalamyn
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    Hydroxocobalamin and erectile dysfunction

    Thanks, but if Hydroxocobalamyn scavenges Nitric oxyd in the blood , means that interact with other molecules and so may worse erectile function ?
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    Hydroxocobalamin and erectile dysfunction

    Hi, didn't understant so much...Hydroxocobalamyn decreased my NO blood value (tested with bood exam). So if nitric oxyd is important for erection...why sould not impact ? Thanks Daniele
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    Hydroxocobalamin and erectile dysfunction

    Good morning, since Hydroxocobalamyn is a nitric oxyd scavenger, could get erectile dysfunction worse? Thanks Daniel
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    Plasma Methionine vs Sam/Sah

    Anybody could answer ? (
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    Plasma Methionine vs Sam/Sah

    good morning , Is plasma mehionine as good indicator of methylation as Sam/Sah ratio ? Thanks Daniele
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    Colostrum Maf

    Thanks, do you think colostrum maf can be taken also on other day or 2-3 days ? In that way I can avoid to divide capsules ....
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    Colostrum Maf

    Thanks Hip , But how can i conserve the powder that i extract from capsules in your opinion ? And you think i could trust in the following brand much cheaper ? http://www.gcmafproducts.com/about.html
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    Colostrum Maf

    Colostrum Maf is totally different. It has a lot of GcMaf inside.... Read the 2 links in my previuous message
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    Colostrum Maf

    No other opinions about Colostrum Maf ?
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    Colostrum Maf

    Hi, Anyone's has tried colostrum maf ? Read this http://www.openaccessjournals.com/peer-review/development-of-colostrum-maf-and-its-clinical-application.html It seems very good There is a cheaper and stronger producer but I worry bout the 200 ng in each caps...
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    Oral Colostrum Macrophage-activating Factor for Serious Infection and Chronic Fatigue Syndrome: Thre

    Hi, Anyone's has tried colostrum maf ? Read this http://www.openaccessjournals.com/peer-review/development-of-colostrum-maf-and-its-clinical-application.html It seems very good There is a cheaper and stronger producer but I worry bout the 200 ng in each caps...
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    Can Overmethylation induce Parkison ?

    Hi, I'm 42 y.o. man with small fiber neuropathy. I stasted the active b12 protocol to increase my methylation (I'm MTHFR eterozygote) but my neurological pain symptoms got worse. This can be for nerve healing but I heard that overmethylation can induce Parkison and I'm very wotty about that...
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    P5P sublingual ? @Fredd

    Good morning, I have small fiber neuropathy. I don't understant why there is focus on taking B12 sublingually and not the others B vitamins. In particular P5P , why is suggested to take it by normal pills ? Thanks Daniele
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    Heterozygous for A1298C and methylcobalamin

    Hi, I read this interesting blog http://drfairchild.blogspot.it/2013/10/mthfr.html?m=1 and my attention was on that point: " MTHFR 677 measures: Avoid folic acid. Use L methylfolate (metafolin) or folinic acid instead, N acetyl cysteine, SAMe, and B12 (methylcobalamin or hydroxocobalamin or...
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    L methylfolate (metafolin) vs 5-methyltetrahydrofolate (5-MTHF)

    Hi, yes this sounds good ))) i think is correct...thanks I think i have to use hydroxicobalamin instead methylcobalamin if i want to decrease my NO level....this is what martin pall protocol says..
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    L methylfolate (metafolin) vs 5-methyltetrahydrofolate (5-MTHF)

    Peroxynitrite is just the reaction between nitric oxyd and superoxyde. I thing is difficoult methylfolate can increase nitric oxyd and decrease peroxynitryte at the same time.... P.S i made plasma exams and i have very high values of nitric oxyd and peroxynitrite...and low values of active folates..
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    L methylfolate (metafolin) vs 5-methyltetrahydrofolate (5-MTHF)

    So why in this post dr lynch says (at point 3) that methylfolate increase nitric oxyd instead scavenge it ? http://mthfr.net/methylfolate-side-effects/2012/03/01/ Also Martin Pall talks about 5-MTHF (witout L) when he suggests supplement for scavenging peroxynitrite. This is his suggested...
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    L methylfolate (metafolin) vs 5-methyltetrahydrofolate (5-MTHF)

    Hi, I read this interesting blog http://drfairchild.blogspot.it/2013/10/mthfr.html?m=1 and my attention was on that point: " MTHFR 677 measures: Avoid folic acid. Use L methylfolate (metafolin) or folinic acid instead, N acetyl cysteine, SAMe, and B12 (methylcobalamin or hydroxocobalamin or...
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    Can Gene Mutation Change After Birth?

    I mean any genes that can be just switched off without mutation of code.. And Hereditary mutations can be reversed ? I think if one piece is missing can't be repaired, is it correct ?
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    Can Gene Mutation Change After Birth?

    So epigenetics can't be inherited ? I was thinking the contrary...
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    Can Gene Mutation Change After Birth?

    But...in simple words..a gene mutation can be reversed or only a bad expression of gene can be reversed ? Thanks
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    L-Carnitine Fumarate

    Hi, i read that L acetyl carnitine in the only form that cross the brain barrier. Is it true ? I'm assuming the fumarate form from Dr. Best as suggested by Freed but I would like to know if what i wrote is true. I would like also know if the fumarate form can help for production of...
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    New info from Ben Lynch - Preventing Methylfolate Side Effects

    Hi, anyboby tested the seeking health supplements of Dr. Lynch regarding methylfolate and methylcobalamin ? Thanks Daniele
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    Methylation for babies ?

    Hi all, I just would like to know what to do when someones with mthfr problems born child ... I think should be good to test baby for mthfr and maybe supplement with some folates. But how can be possible when baby has just some months ? Anyones had any experience ? Thanks Daniele
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    Oral tea tree oil

    Hi, I have fibromyalgia and I assume oral caps of tea tree oil sometimes (80 mg/day) and I see is greit natural antibiotic. This plus probiotic keep very good my gut but I'm worried of possible autoimmune reactions. Do you know if this is possible ? Thanks Daniele
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    b12 to folate ratio?

    Thanks a lot Peter, do you know if does exist a supplement with 3 mg of methylfolate ? Or I have to useonly morer tablet of 800 mcg ?
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    b12 to folate ratio?

    Hi, but what is the best advise for not incurring in methyl trap or other folates deficiences. If I take the 1,25 B12/folate ratio of Dr. Lynch and I want to move from this ratio...better increase B12 of methylfolate ? Possible there nothing about this and only try ?? Thanks
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    High dose of methylcobalamin without folate ?

    Thank you Penny, your experience is very precious for me. So you started metylfolate with 20 mg of methylcobalamin inside..... and how slow did you reach 20 mg ? And after, in witch way you started methylfolate and how slow did you increase it and till witch dose ? Thanks a lot Daniele