• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

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  1. M

    Florida International University Foundation Joins PANDORA as Academic Partner

    Big news of FIU and NEI Center: http://www.facebook.com/PANDORAORG P.A.N.D.O.R.A., Inc. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc. PANDORA's vision is to interrupt the cycle of suffering experienced by an estimated 20 million Americans...
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    Big news of FIU and NEI Center - PANDORA

    Big news of FIU and NEI Center: http://www.facebook.com/PANDORAORG P.A.N.D.O.R.A., Inc. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc. PANDORA's vision is to interrupt the cycle of suffering experienced by an estimated 20 million...
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    Does it make ANY SENSE not to vote for CAA to get big research $$$ in the Chase Conte

    I voted for both WPI and CAA. Don't have to like or agree with CAA but they are getting research done and for that I would vote for the devil. Remember: funding for real research means a cure. Really quite simple. Vote for both WPI and CAA to get us off the couch and out of the damned bed.
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    Dr. Francis Collins: "Forty similar deliberate-infection studies conducted in US" ???

    WE SEEM TO HAVE FORGOTTEN ABOUT THE 40 OTHER DELIBERATE INFECTION STUDIES DONE IN THE US - IS ME/CFS/RETROVIRUS FAMILY ONE OF THEM??? "Forty similar deliberate-infection studies were conducted in [/COLOR]the United States during that period, Collins said." U.S. apologizes for 1940s STD...
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    Article: Who is Dr. Elizabeth Unger?

    Indeed Dr. Unger is impressive in all ways. However, after thirty plus years of the CDC doing everything possible to damage and discredit ME/CFS and label us as severe mental patients, I have NO faith whatsoever that the CDC and Dr. Unger will do much of anything of value for us. I hope I am...
  6. M

    The BIG CHASE: funding US ME/CFS non-profits

    http://apps.facebook.com/chasecommunitygiving/charities/205904991-whittemore-peterson-institute-fo Direct link to WPI. Don't know if it works because I had already "Like" the Chase Community Giving, but give it a shot. If it works, send the direct link on to friends and family. Make it easy...
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    Comment by 'muffin' in 'Chase Community Giving - Whittemore-Peterson Institute - number 5 with 819 votes.'

    http://apps.facebook.com/chasecommunitygiving/charities/205904991-whittemore-peterson-institute-fo Direct link to WPI. Make people crazy and ask them to vote. Give them direct link. I am "forcing" my mother, sisters, and niece to vote. It affects them too big time.
  8. M

    Article: The Big Chase: an extra $525 000 for WPI and/or CAA? It's up to you.

    OR, hit the link below as this brings you directly to Whittemore-Peterson Institute for voting. I don't know if you first must "LIKE" Chase so that this link works, but give it a try. It does take you to WPI...
  9. M

    More Detailed Info on the Public Service Announcements (PSA) HOW TO USE THEM

    "http://archive.constantcontact.com/fs048/1098473133029/archive/1105256900028.html" Congratulations to Lynn Bousquet on winning the MCWPA public service announcement contest. Months of hard work and valuable input from patients have produced a public service announcement that is...
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    More Public Service Announcement (PSA) Detailed Information

    "http://archive.constantcontact.com/fs048/1098473133029/archive/1105256900028.html" Congratulations to Lynn Bousquet on winning the MCWPA public service announcement contest. Months of hard work and valuable input from patients have produced a public service announcement that is...
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    Comment by 'muffin' in 'Chase Community Giving - Whittemore-Peterson Institute - number 5 with 819 votes.'

    "http://chasecommunitygiving.contextoptional.com/charities/205904991-whittemore-peterson-institute-for-neuro-immune-disease" COPY/PASTE INTO BROWSER -
  12. M

    Chase Community Giving - Whittemore-Peterson Institute - number 5 with 819 votes.

    PLEASE VOTE FOR WPI. SEE EASY DIRECTIONS BELOW: http://chasecommunitygiving.contextoptional.com/charities/205904991-whittemore-peterson-institute-for-neuro-immune-disease Takes you right to the Whittemore-Peterson Institute's Chase site for easy voting!!! OR, #1. Go here...
  13. M

    Vaccines Cause Diabetes-CDC CAUGHT MANIPULATING DATA IN THIS STUDY

    Vaccines Cause Diabetes-- Centers for Disease Control and Prevention (CDC) Tagged: * Diabetes (SEE THE BOLD PART ABOUT THE CDC MANIPULATING DATA) ARE WE SURPRISED??? TORONTO, Sept. 20 PRNewswire - The US Centers for Disease Control (CDC) yesterday presented data at the Interscience...
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    Major Public Media Campaign Launched - This WILL Get the Attention of MILLIONS!

    The Winning Public Service Announcement (PSA) Is.... And the Winning Public Service Announcement is....drum roll... Public Service Announcement Winner in the MCWPA Contest Posted by Tina Marie Miller Tidmore on Apr 18 See the winning video of the MCWPA Contest...
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    And the Winning Public Service Announcement is....drum roll...

    http://www.causes.com/causes/511536?m=f042604e Public Service Announcement Winner in the MCWPA Contest Posted by Tina Marie Miller Tidmore on Apr 18 See the winning video of the MCWPA Contest. Congratulations to Lynn. Please share this video to anyone and everyone. Let's go viral...
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    CFSAC meeting notification: May 10-11, 2011 CFSAC Meeting

    The Chronic Fatigue Syndrome Advisory Committee Events and Items! Posted by Karen Mascuch Ravitz on 16 April The Chronic Fatigue Syndrome Advisory Committee will meet on May 10th and 11: "http://frwebgate1.access.gpo.gov/cgi-bin/TEXTgate.cgi?WAISdocID=sxS1ji%2F1%2F1%2F0&WAISaction=retrieve"...
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    CFSAC Reminder!

    Posted by Karen Mascuch Ravitz on 16 April The Chronic Fatigue Syndrome Advisory Committee will meet on May 10th and 11: "http://frwebgate1.access.gpo.gov/cgi-bin/TEXTgate.cgi?WAISdocID=sxS1ji%2F1%2F1%2F0&WAISaction=retrieve" The last day to submit your written testimony or request an...
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    Major Public Media Campaign Launched - This WILL Get the Attention of MILLIONS!

    LINKS ARE IN " " SO PLEASE COPY AND PASTE INTO YOUR BROWSER. WE HAVE BEEN HAVING PROBLEMS WITH FACEBOOK CAUSES CHOPPING OFF THE END OF THE LINKS. PLEASE CHECK OUT THE VIDEOS AND VOTE!!!! Time to Vote For ME/CFS Worldwide Patient Alliance - Public Service Announcements...
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    UPDATED LINK - Time to Vote for PSA - Time to Vote For MCWPA PSA!

    LINKS ARE IN " " SO PLEASE COPY AND PASTE INTO YOUR BROWSER. WE HAVE BEEN HAVING PROBLEMS WITH FACEBOOK CAUSES CHOPPING OFF THE END OF THE LINKS. PLEASE CHECK OUT THE VIDEOS AND VOTE!!!! Time to Vote For ME/CFS Worldwide Patient Alliance - Public Service Announcements...
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    Major Public Media Campaign Launched - This WILL Get the Attention of MILLIONS!

    Time to Vote for PSA - Time to Vote For ME/CFS Worldwide Patient Alliance (www.mcwpa.org) http://www.causes.com/causes/511536?m=f042604e Posted by Tina Marie Miller Tidmore on Apr 11 You get to have your say with MCWPA. We are now calling for ME/CFS patients and their families to vote...
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    Time to Vote For ME/CFS Worldwide Patient Alliance - Public Service Announcements

    Time to Vote for PSA - Time to Vote For ME/CFS Worldwide Patient Alliance (www.mcwpa.org) http://www.causes.com/causes/511536?m=f042604e Posted by Tina Marie Miller Tidmore on Apr 11 You get to have your say with MCWPA. We are now calling for ME/CFS patients and their families to vote...
  22. M

    What are you doing for ME/CFS Awareness Day?

    Please see the www.mcwpa.org site and see what all IS being done by many people. LIVE near Atlanta? 3 May is a demo in front of the CDC but we need a head-count to know how many people are coming, what is needed, etc.
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    Major Public Media Campaign Launched - This WILL Get the Attention of MILLIONS!

    http://apps.facebook.com/causes/posts/716200 Have Your Say! Posted by Andie Pring on 5 April 2011 Want a voice? Feel like no one is listening to you? Well, here's an action you can be involved in that will help educate the public on what it truly means to have this disease. We have a section...
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    Comment by 'muffin' in 'Less than two days left to give ME/CFS Worldwide Patient Alliance (MCWPA) PSA's!'

    Please post your ideas on the www.mcwpa.org site!! We LOVE to hear what you think. PSA feedback is over BUT voting will begin shortly. Thanks Molly!
  25. M

    Have YOUR Say!! MCWPA.org Wants to HEAR from YOU! Tell us what you think.

    http://apps.facebook.com/causes/posts/716200 Have Your Say! Posted by Andie Pring on 5 April 2011 Want a voice? Feel like no one is listening to you? Well, here's an action you can be involved in that will help educate the public on what it truly means to have this disease. We have a...
  26. M

    Mindy Kitei - http://www.cfscentral.com/ - SICK SPOUSES NEEDED!

    http://www.cfscentral.com/ Mindy Kitei "If you have ME/CFS and your significant other or child also has ME/CFS, please contact CFS Central: mindykitei.cfscentral@comcast.net" http://www.cfscentral.com/ Mindy Kitei -- mindykitei.cfscentral@comcast.net "If you have ME/CFS and your...
  27. M

    Comment by 'muffin' in '2010 - the Year in ME/CFS Part I: Overview'

    Thanks Cort for the hard work in putting this together. Very glad someone summarized the efforts done/being done. We need to keep this info update. Thanks again - Hope to meet you at CFSAC!!!! Hope to meet everybody at CFSAC!
  28. M

    NIH State of Knowledge This Week - Patient Advocate's Comments

    In my very humble opinion, I believe that the government people are TERRIFIED by the shear number of patients that are trying to go to SOK. They know we are a basically hostile MOB of very sick, very angry people and who wants to present a paper saying we are not sick, there is no retrovirus...
  29. M

    Major Public Media Campaign Launched - This WILL Get the Attention of MILLIONS!

    ((Note: I had to put the links into " " since they get cut off when copying/pasting. Please copy/paste the links into your browser. Sorry for this.)) May: ME/CFS and other NEIDs Awareness Month Posted by Karen Mascuch Ravitz on 3 April 2011 "http://www.causes.com/causes/511536?m=f042604e"...
  30. M

    May: ME/CFS and other NEIDs Awareness Month - Critical! MAY IS OUR MONTH!!!

    May: ME/CFS and other NEIDs Awareness Month Posted by Karen Mascuch Ravitz on 3 April 2011 "http://www.causes.com/causes/511536?m=f042604e" Awareness Month is Quickly Coming Up! We as patients, advocates, friends and family can make a positive impact this year on ME/CFS awareness...