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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Valcyte - How long have you been / were you on it?

    I was on Valcyte for 3 years. I would not recommend that anyone stay on it for this long. It helped me tremendously, almost to the point of being normal. In fact, it worked so well, that I would push myself to the limit, relapse, and then sometimes increase the dose to the initiating amount...