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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. W

    Anti-retrovirals and CNS penetration

    one question I am starting to have thinking ahead to when or if PWCs positive for XMRV get treated is this. CFS is thought to be have as a central feature a disturbance in the Central Nervous System. Thus, one might think that the XMRV has penetrated there. But one of the current troubles...
  2. W

    XMRV Replication Studies

    a little confused about a report being due in January 2010. So, leaving aside whether or not Dr Lloyd has a bias, do we know for a fact that he has conducted a study looking for XMRV in CFS patients, and do we know that the study is completed and the results due next month?
  3. W

    HGH question

    I know that they are saying that certain hormones activate XMRV. I am wondering if HGH is included in the hormones that would have a negative effect.
  4. W

    treatments/suggestions given to positives

    thank, cold. I did happen to see that, but thanks for mentioning it. I'm actually wondering about Interferon beta specifically in relation to the discovery of XMRV in PWCs. It seems like the beta form of interferon does several things that could help work against XMRV including...
  5. W

    treatments/suggestions given to positives

    interferon beta - xmrv I am wondering about interferon beta as a treatment for XMRV. I have read a few things that make me think it could be a possible treatment. It seems that XMRV is susceptible to the antiviral action of interferon. Also, in reasearch on interferon beta to treat MS they...
  6. W

    DeFreitas 1991 Retrovirus/CFS Study

    Dr DeFreitas - CFS Radio Show Dr DeFreitas did an interview on the CFS Radio Show run by a Dr Mazlen in the NYC area back in the 90s i believe. You used to be able to get the transcripts for all the people interviewed on the show. Many are still available on various sites but I don't see...
  7. W

    XMRV: exogenous and/or endogenous?

    more sensitive testing i have a side question on this. The original incidence of XMRV was found to be 67% in CFS patients and 4% in the controls. After the testing was refined and made more sensitive, the incidence in CFS patients went up to 95%....what did the control go to? Did the...
  8. W

    Kefir For ME/CFS?- Study suggests promising results

    Soya Kefir thanks for bumping Cort. it looks like the product is called Soya Kefir and is a powder. Not sure if that means you use the powder to make your own kefir or if you just sprinkle the powder on something you are eating.... Do you know if this is available in the US or can be...
  9. W

    Kefir-D-Lactate

    I just purchased some Kefir and am wondering if all kefir has the same combination of probiotics. I know from the thread interviewing Dr Logan that kefir didn't produce D-Lactate, but I am wondering if that has to do with the kind of kefir studied or something intrinsic to all kefir. the...
  10. W

    De Meirleir Gut Paper is Out!

    antibiotics does anybody know which antibiotics are best against these bacteria?
  11. W

    IVIG and Xiflaxan: A Dr. Peterson Patient Improves

    Xifaxan Cort, Is it possible to find out the dosage, # of times per day, and # of days of treatment this patient was on Xifaxan? It sounds like a short course of treatment which would be consistent with how Xifaxan is being studied in Irritable Bowel Syndrome (IBS). I also wonder about...