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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Thank you, Lenora, for your kind words. A selection of reports compiled over the last two years: Some of these documents have been revised this month to include updates on the outcome of ICD-11 proposals, updates on timelines, revised links and for text revisions. 1 Update on classification...
  2. Dx Revision Watch

    WHO approves my proposal for removal of “Benign” from “Benign myalgic encephalomyelitis” for ICD-11

    WHO approves my proposal for removal of “Benign” from “Benign myalgic encephalomyelitis” for ICD-11 Report here: https://forums.phoenixrising.me/threads/updates-on-icd-11-and-other-classification-and-terminology-systems.59088/post-2311079
  3. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    The WHO approves my proposal for removal of “Benign” from “Benign myalgic encephalomyelitis” for ICD-11 ICD-11 Report Four | December 2020 “Benign myalgic encephalomyelitis” was first listed in the International Statistical Classification of Diseases and Related Health Problems (ICD) in 1969...
  4. Dx Revision Watch

    Long Covid: Summary of discussions

    SNOMED CT is a comprehensive clinical terminology system used in many countries in parallel with ICD-10. It is used at the point of contact with the patient to record reason for encounter, diagnosis etc. ICD-10 is used after the encounter for collecting data for local, national and WHO...
  5. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Report by Suzy Chapman, Dx Revision Watch March 12, 2020 A request has been submitted by someone in NHS England for adding the term "Systemic exertion intolerance disease" to SNOMED CT terminology system, as a Synonym under SNOMED CT Concept code: 52702003 Chronic fatigue syndrome. The UK...
  6. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Another new post on http://DxRevisionWatch.com WHO approves exclusions for PVFS, ME and CFS under ICD-11’s Bodily distress disorder https://dxrevisionwatch.com/2020/02...d-cfs-under-icd-11s-bodily-distress-disorder/ or https://wp.me/pKrrB-555 A version of this report is scheduled for...
  7. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    New post on http://DxRevisionWatch.com WHO retires "Benign" from "Benign myalgic encephalomyelitis" for final ICD-10 release https://dxrevisionwatch.com/2020/02...c-encephalomyelitis-for-final-icd-10-release/ or https://wp.me/pKrrB-56g A version of this report is scheduled for publication...
  8. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Comment in response to WAMES brief report re recent update on ICD-11: Twitlonger: http://tl.gd/n_1sr4kdh Comment in response to WAMES brief report re update on ICD-11: https://wames.org.uk/cms-english/me-cfs-no-longer-classified-as-bodily-distress-disorder-bdd/ January 27, 2020 Thank you...
  9. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Bite-sized update and annotated screenshots: 1 For anyone unclear how PVFS, ME and CFS are classified and coded in the WHO's unmodified ICD-10 Version: 2016: The G93.3 "Concept Title" is Postviral fatigue syndrome. Benign myalgic encephalomyelitis is an Inclusion under Postviral fatigue...
  10. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Thank you Hip and anni66 for your kind words. I haven't stopped smiling since Sunday - it's been a long slog and still need to have them approve deprecation of the "Benign" word.
  11. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    https://www.actionforme.org.uk/news/update-on-me-in-who-latest-disease-classification Update on M.E. in WHO's latest disease classification January 20, 2020 After years of hard work by M.E. advocate Suzy Chapman, the World Health Organisation (WHO) has doubled back on plans which would have...
  12. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    I have updated my document "ICD-11 Proposal Mechanism, status of processed proposals" to reflect the WHO's recent implementation of the addition of exclusions for PVFS, ME and CFS under Bodily distress disorder. A PDF of document v5, which includes a link for the Rationale for this...
  13. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Rationale for Proposal for Addition of Exclusions (submitted December 02, 2019): Suzy Chapman Content Enhancement Proposal 2019-Dec-02 - 11:53#296I The author has no affiliations or conflicts of interest to declare. Rationale: In ICD-10, there is an exclusion for G93.3 Postviral fatigue...
  14. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    It's taken since 2014 to achieve this.... WHO/ICD Revision has approved the addition of Exclusions for 8E49 Postviral fatigue syndrome; 8E49 Benign myalgic encephalomyelitis; and 8E49 Chronic fatigue syndrome under ICD-11's Bodily distress disorder: On December 30, 2014, I submitted a...
  15. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    From The ME Global Chronicle's Facebook page (Posted 04 November 2019): https://www.facebook.com/groups/TheMEGlobalChronicle/permalink/2571455346419911/ Rob Wijbenga shared a link. Update on the classification of PVFS, ME and CFS for ICD-11 ICD-11 Report One | November 2019 In this...
  16. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Update on the March 2019 release of SNOMED CT Netherlands Edition: The SNOMED CT Concept term Neurasthenia and some associated terms had been retired from the International Edition and from national editions some years ago. But the Netherlands Edition retained the term neurasthenie under the...
  17. Dx Revision Watch

    Reuters 13th March 2019: Article with Sharp, Wessely, Per Fink and co attack Dr Tuller and ME patients

    They've been claiming this since 2001: https://www.theguardian.com/uk/2001/sep/20/medicalscience.highereducation https://www.theguardian.com/education/2001/sep/27/medicalscience.research Still plenty of snouts in the funding trough.
  18. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    As some of you will be aware, there are no disorder/disease descriptions or diagnostic guidelines for any chapters of ICD-10 other than for Chapter V Mental and Behavioural Disorders. ICD-10 Volume 1 includes only brief descriptions for the mental and behavioural disorder categories in Chapter...
  19. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Resurfacing from retirement to confirm that the January 31, 2019 Release of the Australian Edition of SNOMED CT is now available. This national edition release incorporates the change of parent for SCTID: 52702003 | Chronic fatigue syndrome | and terms under Synonyms that was approved and...
  20. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Resurfacing to confirm that the November 30, 2018 Release of the Swedish Edition of SNOMED CT was posted today. This national edition release incorporates the change of parent for SCTID: 52702003 | kroniskt trötthetssyndrom | and terms under Synonyms. I have added this information and a...
  21. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Post #64 edited to add new report on Dx Revision Watch: Update on the status of the classification of PVFS, ME and CFS for ICD-11: Part Three: WHO rejects Dr Dua’s proposal, November 22, 2018...
  22. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Important update regarding proposals for ICD-11 As reported earlier in the thread, there have been three proposals for PVFS, BME and CFS waiting to be reviewed and processed: The proposal submitted by Dimmock & Chapman (submitted on March 26, 2017) The proposal submitted by Dr Lily Chu on...
  23. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    I shall not be available to comment further on this new paper as I am now retired, but a copy needs to be in this thread. Note that the ICD-11 PHC has not yet been released by WHO and WHO has published no date for its projected finalization and release. In April this year, WHO was asked to...
  24. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Tomorrow I retire from advocacy, after 16 years mired in the cesspit that is ME politics. As previously mentioned, I am providing a list of 10 key "legacy" reports and documents from my website on the current status of ICD-11 and SNOMED CT. There is an additional post to add which I have not...
  25. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    Re: a request that "neurasthenie" is removed from the list of Synonyms terms in the Netherlands Edition of SNOMED CT: I have been advised, today, that for the March 2019 release of the SNOMED CT Netherlands Edition, the term "neurasthenie" will be removed from the Synonyms list under Concept...
  26. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    SNOMED CT UK Edition release 20181001 The October 01 release of the SNOMED CT UK Edition is now available from the NHS Digital public version of the SNOMED CT browser. This UK release incorporates the addition of the parent "Disorder of nervous system" for CFS and terms under Synonyms, as...
  27. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    The SNOMED CT Danish Edition release for September 30, 2018 is now available on the public browser. This release of the Danish Edition incorporates the July 2018 International Edition change of parent for CFS and the terms under Synonyms. UK Edition release for October 01 not available, yet...
  28. Dx Revision Watch

    Updates on ICD-11 and other classification and terminology systems

    The SNOMED CT Netherlands Edition release for September 30, 2018 has been posted, today. This release of the Netherlands Edition incorporates the July 2018 International Edition change of parent for CFS and the terms under Synonyms: aandoening van zenuwstelsel = disorder of nervous system...