• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. M

    Blogger Katarina Voss writes a comprehensive article on treating ICC-ME with antiretrovirals

    No updates. People asked on german forums/groups, but there was no reply regarding that. The last was last year regarding the antiretrovirals.
  2. M

    how many of you traveled to India or a developing country before you got sick?

    Indonesia in 2017. The usual vaccines before. Got Salmonella Typhi and campylobacter jejuni there. That was the beginning.
  3. M

    Who else here is in their 20's?

    23. It started two years ago.
  4. M

    Is there consens among specialists regarding IVIG in CFS-patients?

    I have a deficiency (iGg and subclass) but no one wants to prescribe IVIG/SCIG, because i dont get many infections (in fact none since this all started). So for me this sounds really interesting, even more because i also live in Germany.
  5. M

    Is there consens among specialists regarding IVIG in CFS-patients?

    word is that the Charite and Scheibenbogen published a new study regarding (high dose) IVIG recently. I could not find it right now, might be behind a paywall or just for doctors or something. Might be interesting if someone could find this study. Here someone reported that the study was...
  6. M

    Anyone here used HIV/AIDS treatment for CFS?

    New German blog post about HIV medication for CFS http://meversuscfs.blogspot.com/2018/06/arztanfragen-mein-therapieregime-fur.html Just translate it.
  7. M

    The Synergy Trial: Phase 2 results out

    http://www.ijcem.com/files/ijcem0065685.pdf
  8. M

    Cortene Peptide for MECFS? "Curative"?!

    http://shop.bachem.com/h-5852.html
  9. M

    Tips for Finding Reliable Prescription-Free Online Pharmacies

    i mean for example. I only can see "Parapharmacy" or drug store articles. No "real" medicine at all.
  10. M

    Tips for Finding Reliable Prescription-Free Online Pharmacies

    Edit: but i can not find anything. For example i am searching for "modafinil" and the result is a blank page. I can only see "Parapharmacy" Products. I made an account for the website and confirmed my e-mail, but it is still the same. @Hip
  11. M

    Cortene Peptide for MECFS? "Curative"?!

    Urocortin - Cortene - CT38 - CT for Urocortin, 38 amino acids you are right. I did not realize it at first.
  12. M

    Tips for Finding Reliable Prescription-Free Online Pharmacies

    thanks Hip. I had a problem with my browser, as i could only register as an "health care professional" which i am not, of course. I tried it now with Opera and had access to the website.
  13. M

    Tips for Finding Reliable Prescription-Free Online Pharmacies

    Goldpharma has closed? I can not find it anymore. I'm living in Germany which means that i can only buy from within the EU.
  14. M

    Cortene Peptide for MECFS? "Curative"?!

    Is CT38 Urocortin II? Wiki
  15. M

    Cortene Peptide for MECFS? "Curative"?!

    why?
  16. M

    Cortene Peptide for MECFS? "Curative"?!

    I was asking myself the same question, but i don't think so: As far as i know CT 38 / Cortene has not been approved for other disease.
  17. M

    Livestream on Tuesday with Dr. Ron Davis on panel after Unrest screening

    Any chance to view this later on demand?
  18. M

    Reason to be optimistic

    So it can not be Cortene / CT38 as some people suggested?