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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Otaykj

    Opioids and Gastroparesis

    Too bad I can't remember everything all at one time that has helped. DGL Licorice chewable tablets have enabled me to completely eliminate Tums. I ordered it on-line and swear by it.
  2. Otaykj

    Opioids and Gastroparesis

    Too bad I can't remember everything all at one time that has helped. DGL Licorice chewable tablets have enabled me to completely eliminate Tums. I ordered it on-line and swear by it.
  3. Otaykj

    Opioids and Gastroparesis

    I wanted to make sure you got my 1st post about the diet...….. I sent it before this one.
  4. Otaykj

    Opioids and Gastroparesis

    One more thing - high alkaline water has helped me a lot. It's pricey, but every time I go back to the purified water, I can feel it. In my little neighborhood, Safeway has the best selection of water.
  5. Otaykj

    Opioids and Gastroparesis

    Nanni, Here is the link. https://www.gicare.com/diets/gastroparesis-diet/ I am sorry to hear of your recent problems. It seems like its something new every day! I have found the Gastroparesis Diet on many web sites. Basically, it has 3 stages. After the initial few days of liquids only in...
  6. Otaykj

    Opioids and Gastroparesis

    Another thing - pain doctor does not think my gastroparesis is a result of opioid use. I've been pretty steady taking less than 30 mg . a day. I've had numerous documented neuro events since 2005 and my immune systems has gone crazy before where all my auto immune bloodwork has been all over...
  7. Otaykj

    Opioids and Gastroparesis

    I have to share this with you. I had to do the diet. The 3 stage diet. I start stage 1 - liquids for a few days and try to ease into stage 2, but I've had to settle on halfway between stage 1 and stage 2. But for the 1st time since I had pancreatitis & my gallbladder removed in 2014 I woke...
  8. Otaykj

    Opioids and Gastroparesis

    I had a barium swallow, which they said was normal and I will have to research what a small bowel follow-through is. It's possible that I have it, but I doubt it. I have an MRI on Wednesday which should show quite a bit about my intestine as well as the pancreas, which is why they ordered the...
  9. Otaykj

    Opioids and Gastroparesis

    Yes I can believe it! It's been so confusing to me because in one place I will read no dairy, no gluten yet when I go to the medically approved gastroparesis diet that I found on the Internet, it says in the stage three part of the diet to eat all forms of dairy as long as they're low fat...
  10. Otaykj

    Opioids and Gastroparesis

    I'm so sorry to hear about your friends bout with pancreatitis. That was a horrible period in my life. Did you mean NOT to have all things milk? Rather than "her to have all things milk......" The nausea started after I had pancreatitis. I had a cat scan done when I went to the ER on Monday...
  11. Otaykj

    Opioids and Gastroparesis

    I'm having a hard time working on my small hand held devise. I inadvertently send my post before I'm done typing it. I guess it's time to take my laptop to my bedroom. I will try Creon. Thank you so much for you insight. I very much appreciate it. kj
  12. Otaykj

    Opioids and Gastroparesis

  13. Otaykj

    Opioids and Gastroparesis

    Do you have to go to the Mayo Clinic to get the DYS1 test? What kind of doctor do you go to for these tests. Heart rate
  14. Otaykj

    Opioids and Gastroparesis

    Thank you Wayne you're right. I have been introducing fat back into my diet until recently because of my gastroparesis. It's unfortunate the way this works isn't it? Seems like one quits hurting and then something else pops up the next day. Was making my own liposomal vitamin C with sunflower...
  15. Otaykj

    Headache?

    I have an occipital nerve block scheduled for next Thursday. I'm like you I just can't stand the pain anymore. I'm trying not to put a time limit on how much longer I will deal with this pain. I started Butrans patch today. As long as this headache and neck ache continue at this pace I...
  16. Otaykj

    Opioids and Gastroparesis

    Yes, I did mean Pepsin GI. I was typing from memory. I will start taking them in the next day or so. I might try some very small doses of digestive enzymes and the ox bile as well. Very small doses - I buy empty vegetable capsules for that purpose. Thank you so much for replying to my post. kj
  17. Otaykj

    Opioids and Gastroparesis

    This is most interesting. I read the entire snapshot from above and if I was to read your entire paper I'm sure I would find more correlations. In my early 30's, at a time when I was less than 110 pounds and very active, I had the cholesterol levels of a 60 -year-old. Before I had pancreatitis...
  18. Otaykj

    Opioids and Gastroparesis

    Have you thought about a possible pancreatic connection along with the liver and gallbladder?
  19. Otaykj

    Opioids and Gastroparesis

    I apologize for all the typos I need to get off this Kindle !!!
  20. Otaykj

    Opioids and Gastroparesis

    I read the article on the link that you sent me about narcotic bowel syndrome.you're right I do present well without diagnosis . I can only hope that my new pain specialist will be open minded about this. I was very open with them when I made the appointment that I felt that opioids played a...
  21. Otaykj

    Opioids and Gastroparesis

    I'm working on my Kindle and it's very cumbersome. I must've hit a button button that posted my reply before I was done writing it and/or editing it Liver biopsy was taken on only one site I have never taken ox bile. I have found that if the medication/supplements side effects list nausea and...
  22. Otaykj

    Opioids and Gastroparesis

    In 2014 my gallbladder passed a stone that got stuck in the common bile duct. It lead to severe pancreatitis. My gall bladder was removed 10 days later. The Dr put me on digestive enzymes - caused nausea and vomiting. I tried them again a couple of months ago and well I didn't moment this...
  23. Otaykj

    Opioids and Gastroparesis

    Narcotic bowel syndrome could possibly be the cause . I what's on high doses of morphine and OxyContin while I was in the hospital after having pancreatitis in 2014 . I would imagine it was soon after that my GI problem began to surface. I have an appointment to go to the pain clinic in 11 days...
  24. Otaykj

    Opioids and Gastroparesis

    I had liver biopsy. It showed negative for fatty liver disease although all of my MRIs and CAT scans and ultrasounds throughout the years indicated that I did have fatty liver . My ALT and AST numbers go up and down, although they are never alarmingly high. The doctor that performed the...
  25. Otaykj

    Opioids and Gastroparesis

    In 2014 my gallbladder passed a stone that got stuck in the common bile duct. It lead to severe pancreatitis. My gall bladder was removed 10 days later. The Dr put me on digestive enzymes - caused nausea and vomiting. I tried them again a couple of months ago and well I didn't moment this...
  26. Otaykj

    Has anyone read "The Medical Medium"

    I ordered the book and as I began to read it I was pretty excited about the possibility of being able to heal myself. Before I was even halfway through the book I started to feel uneasy about Spirit and his abilities. The book began to feel like the biggest sales pitch in history. That's when...
  27. Otaykj

    Opioids and Gastroparesis

    I'm a new member and this is my first post. I've been on Hydrocodone since 2012. I have been suffering from nausea for years. In the last year it has gotten unbearable. Nausea medicines don't work at all. The nausea is intermixed with much pain in the stomach and gut. Last week I had a...