• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. 6

    How do you adjust?

    maybe try keeping a journal of how you feel?
  2. 6

    Head.

    Me too, exactly! Resting it is the only thing that really makes me feel better.
  3. 6

    Feel a horrible sensation when watching TV, listening to music and even reading

    Yup me too. You're certainly not alone!
  4. 6

    What impact does a little stress have on you ?

    Well said. This illness isolates us. There are a few people I can interact with w/o worsening of illness though.
  5. 6

    Speech Difficulties

    My tongue doesn't get numb, but I can't always move it that much...and then it can get hard to eat. Not very pleasant!
  6. 6

    How would you describe your brain fog?

    It's not that I just can't concentrate, but that I also feel "spacey."
  7. 6

    Talking / mental fatigue

    I talk very little with people each day because of this...so restrictive!
  8. 6

    PEM from writing an email

    Yeah, it's one of the most difficult symptoms for me too...