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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. E

    Lack of Detection of XMRV in Seminal Plasma from HIV-1 Infected Men in The Netherland

    I actually deleted mine too, they were getting pretty complicated and speculative.
  2. E

    Lack of Detection of XMRV in Seminal Plasma from HIV-1 Infected Men in The Netherland

    Cort, hm now that I think about it I've heard that CFS isn't too common in spouses. Still, I've seen nothing formal. Anyway CFS does run in families to an extent. It could be that some study has found a heritability of zero but what I have seen is more like 0.30.
  3. E

    Lack of Detection of XMRV in Seminal Plasma from HIV-1 Infected Men in The Netherland

    I agree, it's possible. I was using 'parasites' in the broad sense, though, which embraces everything which parasitizes. Unfortunately there are two very different senses.
  4. E

    Lack of Detection of XMRV in Seminal Plasma from HIV-1 Infected Men in The Netherland

    What evidence is there that it isn't commoner in sexual contects? I'm not aware of any. I saw something in Straus' book about it - while I didn't do the math, the sample size was pathetic. Also, it is not absolutely necessary that CFS be more common in sexual contacts if it is caused by...
  5. E

    Lack of Detection of XMRV in Seminal Plasma from HIV-1 Infected Men in The Netherland

    > I've been wondering why we haven't heard about any outbreaks in the gay population like there was for HIV Some varmints transmit far better among gay men, for at least three reasons, as compared to straights. And some transmit worse among gay men. I would think that by far the most likely...
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    Lack of Detection of XMRV in Seminal Plasma from HIV-1 Infected Men in The Netherland

    > but this paper is correct that "it has been postulated." Ah, but you've used the past perfect simple. That makes it work. Their use of the simple past makes it sound like it was postulated in 1984. Forgive my intolerable pedantry, I've recently been studying this stuff.
  7. E

    You may wonder why the CAA treats XMRV the way they do... So:

    When he finishes with obesity and CFS I would love to see him take on the whole idea of psychogenic disease. Like Kurt and others above I'm significantly skeptical of almost all of it, except maybe PTSD. I have looked for broad papers shring my perspective and haven't located any yet. Many...
  8. E

    You may wonder why the CAA treats XMRV the way they do... So:

    I shouldn't have said he was a BA in physics. He may be a BS, which usually is significantly more rigorous. Anyway he got it at Harvard and he's an MS in aerospace engineering from Stanford. Not that any credentials guarantee anything 100%, but they convey probabilistic information. Especially...
  9. E

    You may wonder why the CAA treats XMRV the way they do... So:

    A deplorable lack of personal responsibility certainly causes or contributes to a lot of problems in this world. Maybe including some cases of obesity. But it's somewhat true I think that some people over-indulge various vices partly because of low levels of well-being. A more interesting and...
  10. E

    Lack of Detection of XMRV in Seminal Plasma from HIV-1 Infected Men in The Netherland

    Re: peer review in PLoS One - PLoS One is not reviewed in any normal sense. In-house editors, who are not specialists in what they are reviewing, review the papers briefly just to make sure they are not TOTALLY cheezey. Personally I like it that way - a lot. Scientists moan about peer review...
  11. E

    Lack of Detection of XMRV in Seminal Plasma from HIV-1 Infected Men in The Netherland

    Ze peeps iz Nederlandische, not ze nativ-speekern. If they'd said "has been" it would be better, but it's awfully rare to be perfect in a second language and this is par for the course in a middling journal (only Nature is said to fix every single grammatical mistake via editing). Maybe I'm...
  12. E

    WPI Vice Pres Interview on Radio KUNR

    Sorry I am not going to fix those HTML tags. That's how they are supposed to be written!!!!!!
  13. E

    WPI Vice Pres Interview on Radio KUNR

    I don't read psych stuff on CFS often. But I think a very large amount of the psych people consider CFS to equal depression or anxiety or "stress," with "somatization." Therefore they, and those whom they convince, may not consider CFS to be in need of significant research per se - but instead...
  14. E

    FDA/NIH PAPER in PRESS, by Mindy Kitei

    OK, I got it. PNAS says: "PNAS publishes new content online daily at 3 PM Eastern time." So yes, it appears that what we're looking for is a 3pm thing.
  15. E

    FDA/NIH PAPER in PRESS, by Mindy Kitei

    So, Early Edition is only on weekdays, and it looks like there is a particularly large amount of stuff on Mondays. Anyone know if Early Edition comes out at a regular time of day?
  16. E

    You may wonder why the CAA treats XMRV the way they do... So:

    I don't like CAA, but I agree with Caledonia. Vernon is just reporting what the thrust of the various papers has been. In science speak, you sometimes just report what papers say. The fact that some of them might be wrong is simply understood unless you say otherwise - "Dr blah *convincingly*...
  17. E

    Quiet Dynamite: XMRV as an Infectious Agent

    Luv it! Remember, this is not understood to be discredited crap with faulty study design or premises. These studies are old, but they are still considered hard core lupus-ology as of 2007 - not necessarily true, but worth knowing about.
  18. E

    Quiet Dynamite: XMRV as an Infectious Agent

    > So SLE patients get this crap, too? They also get this: Some of those associations may be true, but there is a real lack of emphasis on "correlation != causation." When they say 'fibromyalgia' they basically mean muscle pain I believe, not 'fibromyalgia syndrome' = FMS. What hysteria means...
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    Quiet Dynamite: XMRV as an Infectious Agent

    Dubois [du boyz] was an old-time judeo-american dude from Jersey, who started this book, many editions back. He was one of the first to draw attention to the 'neuropsychiatric' symptoms. (They do use that word.) Such symptoms tend to be neglected in favor of those that are externally...
  20. E

    Quiet Dynamite: XMRV as an Infectious Agent

    DOn't worry bout the EriK! That happens sometimes! Maybe I'll send a short excerpt of Dubois to Ms Marcus later. You gotta love that CDC - always finding way to pitch in even if they can't detect XMRV. THanks guys!!!!!
  21. E

    Quiet Dynamite: XMRV as an Infectious Agent

    Consider zees mein sehr geehrten Herrn: dass zee undisputed #1 reference on systemic lupus is >>Dubois' Lupus<<, of which I have the quite recent 7th edition. And surely the sweet kernals of Pathognosis await, O my friends and only brothers: Right, I'm sure that only mental phenomena could...
  22. E

    Quiet Dynamite: XMRV as an Infectious Agent

    Regarding 'personality disorder': My point, which I have mentioned before, is that MS and systemic lupus and probably some other systemic diseases are similar in terms of 'this kind of thing.'
  23. E

    Suspense. Any news on WHEN the NIH/FDA study might come out?

    Well, being in PNAS vs elsewhere is really a pretty big deal. PNAS is #3/4 across all of biomed (and maybe beyond) - and there really is no #5. Who #5 is varies by field and subfield.
  24. E

    Suspense. Any news on WHEN the NIH/FDA study might come out?

    CAA said on the 9th that the paper was expected "within weeks." What someone said here last night, I have heard before elsewhere: PNAS sometimes takes stuff off embargo days before it is actually published. Thus, you can read about something in the newspapers for three or four days before the...
  25. E

    Suspense. Any news on WHEN the NIH/FDA study might come out?

    PNAS has not officially re-accepted the paper, that's what Prof. Schekman told Mindy Kitei. But in context it seemed like the matter of re-acceptance was, if not quite perfunctory, at least expected to go smoothly.
  26. E

    Suspense. Any news on WHEN the NIH/FDA study might come out?

    Thanks a lot. I was totally stymied as well. Even better, click "just others." After doing that, it's in the third thread.
  27. E

    Blood Products Advisory Committee Meeting Background Material

    It was boring, mostly. I thought Dr Le Grice was impressive. Because of what he's choosing to focus on, and also because of his very deliberate attitude.
  28. E

    Article: Who's In? and Who International XMRV Workshop

    Otis, here it is... but as I recall they don't talk CFS til the end http://soundmedicine.iu.edu/segment/2514/XMRV--A-Virus-That-May-Cause-Prostate-Cancer
  29. E

    Are you uncomfortable to leave home? (possible xmrv symptom)

    By the way Ancien I'm agreeing with you and elaborating my view, of course, not disagreeing or drawing a contrast. In case that was unclear to you or to anyone.
  30. E

    Are you uncomfortable to leave home? (possible xmrv symptom)

    Ancien, I believe that a physiogenesis of long-term chronic anxiety, depression, OCD - in systemic disease and maybe even in at least some otherwise-healthy people - is more than tenable (though not really well-proven). A psychogenesis for any of these is far from proven. Psychological...