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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. J

    Describe your PEM

    I no longer believe that CFS/ME = Post Exertional Malaise, but PEM has been the defining symptom of CFS for me. I think it has been the main underlying feedback loop or viscious cycle that kept me stuck. This seems best explained by the mitochondrial issue of a broken Krebs' Cycle. My ATP levels...
  2. J

    Describe your PEM

    Thanks everyone for sharing. It seems like we have to help ourselves and i think sharing of knowledge is the best chance we have. And those investigations need structure added to them as Inester7 has done with this thread. Thanks for that. 1) When did your PEM start. At the same time of illness...