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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Marchesa

    Always thirsty and peeing loads

    @Sing I just saw this reply. Thank you so very much. I have an appointment with the kidney specialist in February. I'll bring this information with me and see how it goes.
  2. Marchesa

    Always thirsty and peeing loads

    @Sing I have to start by apologizing. I read very slowly, and don't have much time to do so, so haven't read as much as everyone else has. When I learned my labs came back off I took a look. My EGFR (I think) is low. After looking it up, I looked at my previous labs, and found that it was low...
  3. Marchesa

    Small lifestyle changes that have helped me :)

    @jesse's mom I asked because it sounded like you were. I have a friend who cannot sit upright for the two hours at meetings, but was tearing out the sheetrock in her house to repair it. She said it was taking a very long time, but it had to be done and she couldn't hire someone. I'm glad someone...
  4. Marchesa

    Small lifestyle changes that have helped me :)

    @jesse's mom are you doing the work? This thread is what I came looking for and I have taken notes for things to try. I use a food and symptoms app, intolerance food diary, and a generic tracking app, nomie2, where I track my pills, pain, fatigue, and depression. That is, when I can remember...
  5. Marchesa

    Advice on co factors to b12

    Do you know if you have the genetic mutation MTHFR? Is your pee bright yellow after taking your vitamins? I ask because I cannot process cyanocobalamin, the synthetic form of B12. It turns my pee very unnatural yellow and makes me vomit. So I've been on the methylcobalamin for years. I also take...
  6. Marchesa

    What is the course of your ME/CFS?

    Thank you. I don't know what I was doing differently but it worked. Somewhat. I haven't found that specific thread but have been reading some of the others that showed up in the search. But I'm going to look again.
  7. Marchesa

    What is the course of your ME/CFS?

    Is there a thread about blood pressure. I don't want to derail this thread. I have many questions.
  8. Marchesa

    What is the course of your ME/CFS?

    I can't find this. Do I have to go to the main page with all threads to search? If so that would explain why I couldn't find it. Which forum tree is this in?
  9. Marchesa

    What is the course of your ME/CFS?

    Do you know much about blood pressure issues? My blood pressure issues are weird and I have a hard time finding information that applies. I tried looking into the ncbi web site for more information but was promptly lost in terms not aimed at laymen. On the pole, I think I have to say I don't...