• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Each Day

    Farewell – A Last Post from Anne Örtegren who has just lost her struggle with ME

    Very sad, rest in peace.
  2. Each Day

    In Memory of Anne Örtegren

    Very sad, rest in peace.
  3. Each Day

    Is anyone else terrified of catching the flu?

    Yes. I normally don't have the flu jab in case it triggers, worsens my cfsme. I am sensitive to things. If I get a cold I feel poorly for some time. I've also had some breathing issues in the past. I am trying to get a Flu jab today, which is far too late really but if stay clear of it for a...
  4. Each Day

    Advice and opinions please

    I get sensitive to bright lights the more exhausted I get. I can't look at them. Normal sunlight is like a mirror directly shining in my eyes, sometimes I squint in normal day light. This may not be what you are describing? Anyway, I was told (by a doctor, friend) phones and TVs admit some...
  5. Each Day

    New to UK Group

    Hi New to this Group, and the forum. I have been noticing people are using probiotics and anti viral. Mentions of specific doctors and private specialists. Any info appreciated. Also results of taking them... are you much better or? I'm Male 37, been suffering since Mid 20's. Previously fit...
  6. Each Day

    Is anyone else hypersensitive to stimulating herbs/meds/foods?

    I can't touch caffeine. I used to drink coffee with no effect, I could drink it before bed and sleep fine. Occasionally, If I was tired at work I would drink 1 energy drink (this was not often though maybe 5 times in as many years.) When I was really trying lose weight for sport, I'd drink...