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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. J

    CFS/ME specialists in Japan

    Yes, I can see it’s a problem and the language doesn’t help. From reading I can see that it seems many people think that treatment of some kind early on is an important factor in their overall recovery so I want to do my best to make that happen while I’m feeling particularly terrible with what...
  2. J

    CFS/ME specialists in Japan

    Yes, my plan is to ask some of the nurses at my wife’s work to call up and enquire as they have with neurologists so far for me.
  3. J

    CFS/ME specialists in Japan

    Hi Joh, would this be the RIKEN research group that did the study under dr Yasuyoshi wantabe being the main lead? Thanks for your reply.
  4. J

    CFS/ME specialists in Japan

    Thanks panckage. I have come across this doctor, I was hoping to find a doctor that uses more western treatments over traditional Eastern style treatments. Madarame seems focused on acupuncture and body balance etc
  5. J

    CFS/ME specialists in Japan

    That would also make sense - everyone looks tired here...
  6. J

    CFS/ME specialists in Japan

    I wouldn’t be surprised due to the amount of overwork here
  7. J

    Vitamin D and / or sunlight making your ME worse?

    I had my levels checked recently and it was at 13ng/ml which of course is very low indeed so I’m using 5000ug daily for a month, maybe longer to get the levels up. It has been 10 days and I’m not feeling any different. I have been feeling particularly terrible the last 5 weeks and I wonder if...
  8. J

    CFS/ME specialists in Japan

    Hi all, Long shot, but I moved here about 9 weeks ago from the UK and I’m sure this is what’s going on (everything else appears to be excluded) and it’s getting worse, and quickly. If anyone is in japan and knows of any specialists or doctors that have a special interest that would be so...