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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. MAOAr297r

    Protein cheat sheet

    Update: I caught a few small typos in the PDF and corrected them. Here is the better version. Thanks
  2. MAOAr297r

    Protein cheat sheet

    Hey everyone, I'm very sick with what is either M.E or M.S. I find out soon. Never the less I've been spending a lot of time in bed studying so I can to be prepared to finally get back in school this summer or fall. My major is Cell and molecular bio. It will have more emphasis on neurobiology...
  3. MAOAr297r

    Blood test help

    Thanks for the reply! I'm not sure if the CD57 is related to lymphocytes expressing it. I agree very much with your statement though. The odd thing is with all that said I've been tested for everything in the book infection wise and I haven't fond a scrap of anything. To me it makes me wondering...
  4. MAOAr297r

    Blood test help

    Hey everybody, I got about $10k of blood test back from my molecular medicine MD/PhD physician and many things are messed up. He unfortunately does not call me for a week to explain what they mean and what needs to be done. I'm just sitting here with pages of tests but can't fully understand...
  5. MAOAr297r

    Depersonalization/Derealization and brain fog

    Hey guys, I was lucky enough to have an appointment with an MD/PhD at a molecular medicine clinic. He specializes in M.E and he said we can get DP/DR from neurotoxins. I suspect there are high levels of ammonia doing it in some cases. Also of course the NMDAR agonist Quinolinic acid could play...
  6. MAOAr297r

    Any Nicheren Buddhists out there! How does having ME/CFS effect your practice

    Hi, I'm pretty ill but I've found some ways to practice Vipassana. I've found lying meditation to be useful as I'm nearly bed ridden. I spent 5 weeks on silent retreat last year meditating around 7 hrs a day last year. I let the kind staff know I was sick and they gave me a flexible schedule...
  7. MAOAr297r

    Can M.E predispose a once healthy brain to bad hard to treat depression?

    I just randomly found something that relates to this. I was studying a neuro book to get ready for school (when and if I can go back) and they were talking about how cytokines can influence regions of the brain.interestingly they said IL-2 was being used in cancer treatment therapy (infusion)...
  8. MAOAr297r

    Can M.E predispose a once healthy brain to bad hard to treat depression?

    I'm so sorry thats rough. My gut is a mess. I wish you luck on fixing your gut, it sure can be tricky sometimes.
  9. MAOAr297r

    Can M.E predispose a once healthy brain to bad hard to treat depression?

    I'm sorry sounds rough. I need to consider the gut more I suppose as it can very central.
  10. MAOAr297r

    Can M.E predispose a once healthy brain to bad hard to treat depression?

    thank you for elucidating.
  11. MAOAr297r

    Can M.E predispose a once healthy brain to bad hard to treat depression?

    Thank you for sharing that! I have no idea about high levels of glutamate in ME/CFS but I suspect it could be possible. The pieces are in place for it. Dr. Jarred Younger might have some work on it. He's great.
  12. MAOAr297r

    Can M.E predispose a once healthy brain to bad hard to treat depression?

    Sure! I've spent hours reading about them. Whatever you do I advise you actually don't take those supplements though, you'll see in the papers. It gets confusing and it almost looks like M.E can have a protective effect against MDD on the sphingolipid front but I'm quite sure it's...
  13. MAOAr297r

    Can M.E predispose a once healthy brain to bad hard to treat depression?

    We know a ton of the mechanisms behind depression. Most certainly not all but we know a good deal. As a simple example altered singolipid metabolism constantly evokes MDD in rats because spingolipids modulate biogenic amines (ST,DA,NE). When they fix the spingolipid metabolism the rats resume...
  14. MAOAr297r

    Can M.E predispose a once healthy brain to bad hard to treat depression?

    I get that very much. One docor was conviced I was depressed when I wasn't becuase my activity
  15. MAOAr297r

    Can M.E predispose a once healthy brain to bad hard to treat depression?

    I'm on it! thanks for sharing that sounds fascinating :)
  16. MAOAr297r

    Can M.E predispose a once healthy brain to bad hard to treat depression?

    Hey guys here is a dumb video with my thoughts. I'd love to hear yours about this topic. Sorry the video is long. I just started taking an online class on how gut mircboes influence the brain though the Pasteur Institute too. I know from Dr. Hanson our mircobiome is messed up. I bet thats just...
  17. MAOAr297r

    Low Dose Dextromethorphan (cough syrup) looks promising. Has anyone tried it?

    Well said. As someone who has struggled with dp/dr and tried low does dxm I can confirm this. Thats also the reason I wasn't given ketamine for my depression even though I was eligible . dp/dr= no fun.
  18. MAOAr297r

    Supplement help

    Hey guys, I have just started taking NADH at 20mg and it noticed it helps a bit. What dosages do you guys like to use for NADH and how many times a day do you take it? I just receive Pyruvate I ordered it after hearing Ron Davis speak about it. I'm going to try a low does as I know it can...
  19. MAOAr297r

    Chronic Lyme scam.

    I agree. Plus Ron Davis said they suppress (suppress or are similar word) our mTOR gene and in ME/CFS and it makes us even sicker. He said us ME/CFS people have to be very careful with antibiotics. I agree so much that an ND is not a doctor lol. I had 3 of them and was told not to use them but I...
  20. MAOAr297r

    Loss of Motivation

    Oh thanks for sharing all that! I'm going to try all those options.
  21. MAOAr297r

    Chronic Lyme scam.

    I wish legal punishment. I've been diagnosed with ME but before this I was seeing ND's in alternative medicine and they all said I had chronic lyme. I spent over 7 months on three antibiotics and got way sicker...
  22. MAOAr297r

    Loss of Motivation

    Hey guys just discovered something from a friend on PR. She try NADH so I just ordered some and took it. I actually feel a tiny bit more motivated. Not much but it's something at least.
  23. MAOAr297r

    Loss of Motivation

    I had this same exact problem! My doctor wanted to elevated my dopamine so he put me on some meds. They help but I still struggle a lot sometimes. I'm sorry your are dealing with this my friend, I know its rough. :(
  24. MAOAr297r

    Cognitive Decline

    I understand so much. I've had the same problems with antidepressants. I suggest you try a bunch of different ones until you find one that works. Thats what I did and it helps. I was at lunch the other day and I had to add a $5 tip to a $20 bill and I wrote something like 27.....I'm honestly a...
  25. MAOAr297r

    Per Fink

    Wow I just looked back at this after my adderall and caffeine wore off. What a dumb idea that was of mine. ahhh brain fog+ stimulants makes me even denser lol
  26. MAOAr297r

    Per Fink

    Hey guys, I just found this sick mans email and said hello. I told him once I'm qualified with my PhD in neuroscience I'm going to find ways to actually pursue him. I propose we below up his inbox with lovely messages and the works from Ron Davis's team at Stanford. Maybe at least we should let...
  27. MAOAr297r

    So tired. Heres a clip of my day. I really thought Adderall would help :(

    I've had maybe 9 or 10 psychiatrist because of refractory depression. All except 2 have been absolutely wonderful, smart and kind. I agree with you.
  28. MAOAr297r

    So tired. Heres a clip of my day. I really thought Adderall would help :(

    I agree. I see him for depression (which I don't have much of anymore) and he keeps my meds straight. So of their old school "theories" are so bazar. I'm going to try to see a doc thats more like a clinical neuroscientist or neurologist. More science less woo woo. I agree. We need a good...
  29. MAOAr297r

    So tired. Heres a clip of my day. I really thought Adderall would help :(

    I agree. How do I get real energy? I'm here to learn.
  30. MAOAr297r

    So tired. Heres a clip of my day. I really thought Adderall would help :(