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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. G

    Attempting to identify members of my subgroup - Subcutaneous Fat Loss

    I have all of these symptoms plus muscle wasting and problems with connective tissue. I see Dr. Bonilla at Stanford ME Clinic next week. I included these symptoms in my illness summary.
  2. G

    subcutaneous fat loss, cracking joints

    I know this is an old thread but wanted to say that I have experienced all of these symptoms, right down to the wrinkled finger tips. In February of 2017 I suddenly developed severe burning pain, severe cognitive issues that continue to get worse, and the same fat loss as others have described...
  3. G

    Fairly rapid tissue and muscle wasting during disease onset

    I am experiencing very similar symptoms. I had a neurological insult, then things started spiraling downward. Tissue and fat loss. I watched my skin loosen and then turn stretchy with little substance. I can feel my bones even though there is fat over top, but the fat is not like it used to...