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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. S

    Why aren't they studying XMRV and LYMPHOMA?

    Will ask doc about famvir, thanks.
  2. S

    Why aren't they studying XMRV and LYMPHOMA?

    Had several biopsies last year, liver, esophagus, lymph nodes. No cancer (yet) but still concerned. Liver tissue sent to Stanford bc docs couldn't classify tumors. Stanford came up empty also. But still here ;)
  3. S

    Why aren't they studying XMRV and LYMPHOMA?

    The lymphoma connection is more frightening than my symptoms now. I'm from Incline Village, XMRV positive, and I have a liver and spleen full of tumors and a chest full of swollen lymph nodes. Docs thought I had metastatic liver cancer but I don't. However, it looks like I have a very good start...