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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. R

    WPI UK XMRV testing/study

    Hi Paddygirl, I have sent you a pm on this matter.
  2. R

    WPI UK XMRV testing/study

    Check Uk study forum for new info...
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    "DETERMINING XMRV'S MUTATION RATE" by Mindy Kitei

    Article can be found below http://www.cfscentral.com/
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    Ondamed machine

    I done 3 sessions on one. Was going through a bad patch ..Didnt feel any benefit from it though. I have heard it depends on your practioner and their experience with the machine as they have to set the frequencies .. Was curious about these machines but alas I received no benefit from 3 sessions...
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    WPI Letter to Dr McClure ****

    All of this is really getting my interest up .. It is highly unlikely that the WPI would still be engaging in public spats with other scientists if they were not 100% confident with their findings regarding XMRV in the 6 months or so since the science paper .Will xmrv really be our answer ...
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    Constant nerve tingling ,hands legs ,head..

    Hi Scarlett - how are you getting on ?I hope you are feeling better. I have a constant vibration going on throughout my body especially when standing or if I extend my limbs fully.Still have the constant tingling everywhere (like pins and needles ) and my legs and hands are going numb a lot...
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    Low dose Naltrexone

    Oerganix -Thanks for the advice - I have decided to go back to a dose of .8ml for the moment .I will give it a couple of weeks before I decide to up the dose again.I probably need to just up the dose slowly rather than thinking I have to get to at least 3.ml as soon as possible.Its possible I...
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    Low dose Naltrexone

    Just started LDN last week and thought I would update on my progress.Started at .5mg due to previous bad reactions from medications.Little sleep the first night and some gut discomfort but nothing new there.. Felt a lot more energetic and brighter the next day despite the lack of sleep.Also...
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    Constant nerve tingling ,hands legs ,head..

    Hi David- Congrats on your returning health - how long did it take for you to experience results on the active B12 protocol?
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    Constant nerve tingling ,hands legs ,head..

    Hi Gerwyn - did you have any tests that showed you were B12 deficient before embarking on the B12 ivs? There is only one practioner here in Ireland offering Iv treatment that I know of and he is very expensive ..If I knew I was B12 deficient I guess I would def go for it. Nev
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    Constant nerve tingling ,hands legs ,head..

    Hi HW, yep have had B12 levels checked ..roughly about 350 I think..realise that this is not the best test and that homocysteine and MMa tests are better but my doc thinks my B12 levels are fine and does not want to check these further.It is hard to get any further tests done here in Ireland...
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    Constant nerve tingling ,hands legs ,head..

    NO - my doc didnt think there was any point in sending me to a neurologist..He just says its probably a symptom of the cfs/me...I have persisted in asking for a neurologist appointment and have finally got one ..unfortuntly it says I probably have severe cfs so that will probably result in a...
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    Adrenal Fatigue and treatment

    I have been taking this for a couple of months after one false start previously. Still experience heart palps after taking it and have noticed no real gains from taking it ..ie still waking in the middle of the night with heart racing etc .. I am just thinking maybe it is time for a change of...
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    Adrenal Fatigue and treatment

    Just wondering if any of you have had any sucess with treating adrenal fatigue.I have had the Adrenal Stress Profile from Genova which showed Adrenal fatigue-non adapted response. I have tried Adrenal stress end supplements which have not helped .Just wondering if anyone has managed to treat or...
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    Constant nerve tingling ,hands legs ,head..

    I thought that was a good possibility but the docs ruled that out ..my blood results were about 350 or so I think..They said there was no need for injections or supplementation . There are no cfs specialists or good docs here in Ireland so treatment is basically grin and bear it.. Having read...
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    Yes Poor Sleep Does Whack Your Immune System

    My latest relapse came from not being able to sleep for 4 nights running due to worrying about a relationship break-up ..so I have to agree that sleep is very important to our immune systems ..especially our cfs immune systems !
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    Constant nerve tingling ,hands legs ,head..

    Cheers guys for some suggestions , Marylib I may try that certain herb suggestion if I dont get some relief soon !
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    Constant nerve tingling ,hands legs ,head..

    Hi Deb , This has been my one of my main symptoms for the past year along with severe gastric problems mainly upper gas , it has relaxed at some points for days or weeeks but has flared up big time recently..lyrica was the only thing suggested but caused my stomach to react with severe...
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    Constant nerve tingling ,hands legs ,head..

    Hi everyone, going throught a bad period at the moment and I have contant nerve tingling throughout my legs, hands and on the top of my head (pins and needles like feelings ) which are going non stop...and driving me around the bend in the process.Was prescribed lyrica but was unable to...