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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Complex CFSer

    Clinical Trial at Brighton/Sussex Hospital

    I don't know on what you base that statement. I read the thread and everything written sounded intelligent and was supported by comments on the thread and a research link.
  2. Complex CFSer

    French research finding about aluminium in vaccines causing CFS

    "Aluminum From Vaccines vs Aluminum in Our Environment The administration of aluminum into vaccines is most commonly justified by the fact that a person usually accumulates more aluminum in their body each day simply by eating, but what people fail to take into account is that your body has a...
  3. Complex CFSer

    French research finding about aluminium in vaccines causing CFS

    EBV syndrome I don't know you'd have to Google it, but I imagine the health symptoms you are left with as a result of EBV. The study you would have to Google also as I don't know. EBV contamination, means vaccines contaminated by EBV, vaccines are impure. Just going by what they said...
  4. Complex CFSer

    French research finding about aluminium in vaccines causing CFS

    Interesting. "A study of 200 patients with Epstein-Barr Virus (often called Yuppie disease) is scheduled for publication this spring in the journal Medical Hypothesis. In an advance report in the San Diego Tribune (September 30. 1987). the study’s researchers have linked EBV syndrome to...
  5. Complex CFSer

    French research finding about aluminium in vaccines causing CFS

    Is there any information on whether the viruses the vaccinated people had, were the viruses from the vaccination or different ones? Has anybody tested whether there is a correlation between which viruses or even types of virus?
  6. Complex CFSer

    French research finding about aluminium in vaccines causing CFS

    There surely has to be a blood test to find out whether a virus or it's after-effects are present, to rule that out. For anyone interested I also found these: "Aluminum Toxicity: A misdiagnosed epidemic (Part 1)" http://proliberty.com/observer/20071207.htm "Tired or Toxic? Chronic Fatigue...
  7. Complex CFSer

    French research finding about aluminium in vaccines causing CFS

    It says here: https://www.sciencedaily.com/releases/2008/11/081118141856.htm "A team of scientists have investigated a case of vaccine-associated chronic fatigue syndrome (CFS) and macrophagic myofasciitis in an individual demonstrating aluminum overload." indicating that they are seen as two...
  8. Complex CFSer

    French research finding about aluminium in vaccines causing CFS

    I didn't watch the whole thing, but it has English subtitles for the part I saw. I don't know about the source, but I do know that it's absolutely true that aluminium is a neurotoxin. I have also just seen this video (embedded in a blog post) which is (again) about autism, regarding the mast...
  9. Complex CFSer

    French research finding about aluminium in vaccines causing CFS

    https://www.facebook.com/jbhandleyjr/videos/2101104029929741/UzpfSTU1MzA4NjYwMTUzNTcxNDo5NjE0OTM4MjA2OTQ5ODg/?fref=pb&hc_location=profile_browser They discovered the aluminium in tissue in the body even years after vaccination and it was thought to be soluble. There is an (autism related)...
  10. Complex CFSer

    Cardiologist video about diet to improve weight, fatigue etc.

    @Sundancer - I suspect I have non-coeliacs gluten intolerance also, or at least wheat intolerance. Your diet sounds really good and testament to that, is that your weight is also good, not overweight. @Timaca - for a long time I found that tomatoes and peppers seem to give me problems, even...
  11. Complex CFSer

    Cardiologist video about diet to improve weight, fatigue etc.

    On the grain issue: "Fatigue as a determinant of health in patients with celiac disease" https://www.ncbi.nlm.nih.gov/pubmed/19935081 "Non-coeliac gluten sensitivity" http://www.bmj.com/content/345/bmj.e7982 "Non-coeliac gluten sensitivity: piecing the puzzle together"...
  12. Complex CFSer

    Cardiologist video about diet to improve weight, fatigue etc.

    Here's a research article on grains: "The Dietary Intake of Wheat and other Cereal Grains and Their Role in Inflammation" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3705319/ "In the present review, we describe how the daily consumption of wheat products and other related cereal grains could...
  13. Complex CFSer

    Cardiologist video about diet to improve weight, fatigue etc.

    @Timaca People do eat tomatoes raw. He did use multiple references throughout the video and there is plenty on the internet explaining lectins are harmful to humans, here is one example: "Do dietary lectins cause disease?" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1115436/ In the video he...
  14. Complex CFSer

    Cardiologist video about diet to improve weight, fatigue etc.

    ...funny thing is that wheat bran is on there and it's a grain which is the bad food!
  15. Complex CFSer

    Cardiologist video about diet to improve weight, fatigue etc.

    OK done a search and Wikipedia says: Top 10 Foods Containing Prebiotics Food Prebiotic Fiber Content by Weight Gum Arabic 85% Raw, Dry Chicory Root 64.6% Raw, Dry Jerusalem Artichoke 31.5% Raw, Dry Dandelion Greens 24.3% Raw, Dry Garlic 17.5% Raw, Dry Leek 11.7% Raw, Dry Onion 8.6% Raw...
  16. Complex CFSer

    Cardiologist video about diet to improve weight, fatigue etc.

    If you take probiotics, then spend a couple of weeks there and then leave because they have nothing to eat. You need to also take prebiotics. Clinical studies prove prebiotics work. Bifidobacteria are the most important type of good microbe to us. They stimulate the immune system and...
  17. Complex CFSer

    Cardiologist video about diet to improve weight, fatigue etc.

    For every cell in your body you have 9 microbes that are not human. Most reside in the gut and help to digest food, they can send messages to your brain by using your hormones to communicate with your neo cortex. Microbes also help your immune system fight off illness. Antibiotics - one round...
  18. Complex CFSer

    Cardiologist video about diet to improve weight, fatigue etc.

    Still watching the video, cursor froze so had to force reboot and post the thread prior to doing so. Will post again with other findings in the video once I've finished collating them.
  19. Complex CFSer

    Cardiologist video about diet to improve weight, fatigue etc.

    Dr Steven Gundry, cardiologist's video on how diet helped his own weight and has effect on overall health including serious fatigue/lacking energy. Perhaps some ME/CFSers are due to diet or at least exacerbated by weight? It's a waffly repetitive video but here is the link. He claimed this...
  20. Complex CFSer

    Daily Mail Today: ME patients might be genuinely ill after all.

    Thanks alex3619. So it is mitochondrial linked.
  21. Complex CFSer

    Daily Mail Today: ME patients might be genuinely ill after all.

    Here's the study abstract if anyone wants it: http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0186802
  22. Complex CFSer

    Daily Mail Today: ME patients might be genuinely ill after all.

    https://en.wikipedia.org/wiki/Mitochondrion
  23. Complex CFSer

    Daily Mail Today: ME patients might be genuinely ill after all.

    You beat me to it, saw the article yesterday and was just going to post. Lucky I searched the forums to double-check first. I wonder how this lack of energy to cells ties in with mitochondrial dysfunction. According to 23andme I have some of the danger mutations (although not the very worst...
  24. Complex CFSer

    Mast Cell Issuers new page on PoTs UK

    Do you mean all those are equivalent to anti-histamines Learner1?
  25. Complex CFSer

    Mast Cell Issuers new page on PoTs UK

    Ah. Same as what I take then!
  26. Complex CFSer

    Mast Cell Issuers new page on PoTs UK

    Hi ryan31337, is H1 blocker a beta blocker?
  27. Complex CFSer

    Mast Cell Issuers new page on PoTs UK

    http://www.potsuk.org/mcas I have so many of these symptoms it's untrue and have always had dermographia. Funnily enough I take long term hay fever tablets every day which would appear to have been helping the symtpoms without me knowing. (sorry for the typo in the header, edit doesn't allow...
  28. Complex CFSer

    Blood Pressure Going Very High With Almost No Effort

    Wow more massively high readings! Makes mine seem almost paltry! Although I did look up what the definition of high was and it met it. Looks like I need to go and attempt something really energetic to see what happens. If only I could...
  29. Complex CFSer

    Blood Pressure Going Very High With Almost No Effort

    Interesting @gregh286, I didn't know that was the case. Wow, that's a massive reading! Maybe that's it, abnormal fluctuations then, rather than a permanent state of it.
  30. Complex CFSer

    Blood Pressure Going Very High With Almost No Effort

    At the approximate period of time I went for the TT testing, I had been so dizzy so frequently, that even sitting down upright was often too much for me and standing up to walk was worse. I would need to stop several times to climb the stairs. Since I have been taking a massive amount of...