• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. moblet

    "Why I put more trust in homeopathy than conventional medicine" (on CBT and GET)

    Exactly. Also, unlike misguided medical intervention, homeopathy is unlikely to cause any harm to one's health. If you consulted a homeopath you might spend your entire appointment rolling your eyes but you wouldn't be spending it fearing further (and possibly permanent) damage to your health...
  2. moblet

    What helps your vibrating buzzing electrical symptoms? Meds? Herbs? What triggers them?

    Forgot to mention that you may also be able to influence your symptoms significantly by "meditating" with them, i.e. lying still with as little enrivonmental disturbance as possible, "tuning in" to the activity in your body and seeing if you can smooth it out. E.g. when you tune in you might...
  3. moblet

    What helps your vibrating buzzing electrical symptoms? Meds? Herbs? What triggers them?

    With the technologies available today this kind of thing is something I would have expected neurologists to be all over by 2017, but I'm not going to start on that topic... My suggestions are: Environmental Minimise your exposure to electric fields and electromagnetic fields and radiation. If...
  4. moblet

    Any idea?

    Structural problems can cause all that and more, and you wouldn't be the first to have them triggered or aggravated by food poisoning. Your structural issues may or may not be more complex than just tightness in the ribs; either way osteopathy is your best bet. If that osteopath can't sort out...
  5. moblet

    S. Wessely - Death threats, abuse, smear campaigns - Standing up for Science: 29 March

    I'd love to attend this event but unfortunately I'll be practising my illness beliefs that day.
  6. moblet

    PACE trial, "piece of crap" or "thing of beauty"? (Poll)

    Don't worry @suseq, you're fine. We're referencing an aspect of Wessely's behaviour that hasn't been mentioned in this particular thread (but you can see it here). One of his tactics for undermining sufferers was to claim that he had received death threats from them (i.e. clearly this shows that...
  7. moblet

    PACE trial, "piece of crap" or "thing of beauty"? (Poll)

    You're probably too late. It's almost certainly been parlayed into a death threat by now ;)
  8. moblet

    PACE trial, "piece of crap" or "thing of beauty"? (Poll)

    If I may muddy the waters a little further: In the Beginning was the Plan And then came the Assumptions And the Assumptions were without form And The Plan was completely without substance And the darkness was upon the face of the Workers and they spoke among themselves, saying "It is a crock of...
  9. moblet

    PACE trial, "piece of crap" or "thing of beauty"? (Poll)

    We should seek some expert opinions by polling some scatologists. But not philosophical scatologists, they would accuse us of devising a moral dilemma.
  10. moblet

    Prof Sir Simon Wessely's connection with insurance agencies by Dr Hyde

    Reminds me of a talk I once attended where an evaluation specialist had reviewed the outcomes of psychiatric intervention throughout a region on a population-wide basis. He summed up his findings thus: 1. Psychiatry operates on fashion, not evidence. 2. On a population level there is no evidence...
  11. moblet

    Why The Lancet won't reject the 'Graded Exercise Therapy' study

    The moral of this - and other - stories is: don't "believe in science".
  12. moblet

    Pins and Needles...in my face?

    Sounds like something cranial osteopaths would easily recognise and treat. Acupuncture might also help but probably not as directly as osteopathy.
  13. moblet

    DWP ‘Kill Yourself’ scandal

    The answer would be to calmly lay out one's exit plan and dispassionately list the reasons why it can't be actioned (yet), including citing research on the impact of suicide on those left behind and the financial costs imposed on the health system by failed suicide attempts. Then follow up with...
  14. moblet

    Who are the 10% that get better

    A recently diagnosed sufferer I once knew had read a book documenting the stories of 30 or 50 sufferers who had recovered, hoping to find a common thread that she could use for her own recovery. She said the only thing the stories had in common was that the sufferers never gave up searching...
  15. moblet

    Feeling worse earthing

    Bummer. Although you already knew you were in a very small percentage of people :| Reacting badly to everything you try could indicate that your body is clinging desperately to a precarious equilibrium. I spent a lot of years there and am not completely clear of it.
  16. moblet

    Feeling worse earthing

    I've experienced that from fascial strain, but it's a symptom I've most often heard described by sufferers of anxiety.
  17. moblet

    Feeling worse earthing

    Ah, sorry, I was assuming the breathing difficulty was in the lungs, not sinuses. Mucous may still be involved - I find that eating, and to a lesser extent drinking, can have an expectorant effect. Might the increased amount of time you spend horizontal and/or with your nose in close proximity...
  18. moblet

    Feeling worse earthing

    I can think of four different mechanisms that could cause breathing difficulties: 1. Inflammation of the lungs and/or respiratory tract (e.g. due to allergy). 2. Bronchospasm, where the muscles around the respiratory tract act to constrict it (e.g. asthma that responds to salbutamol). 3...
  19. moblet

    Wessely - Medical school “banter” denigrating GPs and psychiatrists must stop

    Over a decade ago I attended a presentation by an evaluation specialist who had completed an evaluation of psychiatric interventions conducted across a region with a population of over two million people. He was quite blunt in his conclusions: 1. On a population level the evidence indicated that...
  20. moblet

    Feeling worse earthing

    Sleep is good.
  21. moblet

    Feeling worse earthing

    Vertigo doesn't necessarily mean that the room spins, it just means that there's a sensation of movement when there is no movement. I sometimes have a pulled-down-to-the-ground feeling, usually from behind. Just as medications don't always have the "right" effects on people with complex...
  22. moblet

    Feeling worse earthing

    Activating the sympathetic to compensate for POTS makes a lot of sense, which is one nutshell in the whole peanut butter factory of pushing oneself through one's symptoms in order to get anything done in life. I don't usually have straight POTS but I do have some kind of tachycardia issue going...
  23. moblet

    Feeling worse earthing

    That's not at all a stupid question, and the short answer is yes. The sympathetic is associated with activity and the parasympathetic is associated with rest. The classic "fight or flight" scenario is one where a successful sympathetic activation is essential to survival, and if parasympathetic...
  24. moblet

    Does Anyone Have Math-Only Brain Fog?

    I have a degree in maths and was working as a mathematical modeller when my health collapsed. In theory I could have kept working from home but most of what I used to be good at was now confusing me, especially anything multidimensional or non-linear like @PatJ mentioned. One of the first things...
  25. moblet

    Feeling worse earthing

    For my money this is a clear and promising sign that would make me determined to continue:
  26. moblet

    Feeling worse earthing

    @L'engle apologies and thanks - I don't follow everything here and wasn't aware of the parallel discussion.
  27. moblet

    Feeling worse earthing

    Yes. This post in another thread of yours was me. I started out with the homemade device pictured and found that it improved rest and stopped my nervous system replicating pain around my body. I now use earthing bedsheets and have an earthing mat at my computer keyboard and car seat. Your...
  28. moblet

    Feeling worse earthing

    I think that any noticeable reaction to earthing is a good sign, and that you're right to want to perservere with it. If it's hammering you too much I'd second the advice from @Cheesus re backing it off a bit. Going from zero to 24/7 anything can be fraught when your body's struggling. Maybe try...
  29. moblet

    absent/diminished patellar reflex

    Same here. In my case I have significant structural issues that respond to cranial osteopathy.
  30. moblet

    Progressive M.E.

    Alison Hunter, who died in the 1990's of what you would describe as "progressive ME", was I believe the first person to have ME recorded as the cause of death. On that site is a link to another case recorded in the UK in 2006.