• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. SSekouB

    ME/CFS Specialists in Seattle, WA State

    Thank you so much!! I will look into this.
  2. SSekouB

    ME/CFS Specialists in Seattle, WA State

    Sorry, I’m just noticing that you asked this @Redtruck99. I have not found anyone, unfortunately. Still searching. I keep hearing that there really are none, only a couple of Naturopaths.
  3. SSekouB

    Tips for Air Travel?

    Thank you @Foxglove. Extremely helpful.
  4. SSekouB

    Tips for Air Travel?

    Thank you, @BeADocToGoTo1, great suggestions and some reminders I’d forgotten about. Appreciate it.
  5. SSekouB

    So You Think Your Genetic Info Is Protected? Uhhhhh.....Not So Fast ......

    You are absolutely right. One can never really see all the myriad ways in which something can come back to haunt. But, if you think about it..., it’s always the 2nd husband’s third uncle that screws it up for everyone — every. time.
  6. SSekouB

    So You Think Your Genetic Info Is Protected? Uhhhhh.....Not So Fast ......

    Yeah, it’s terribly surprising that a company would fail to do what it promised. :eek:
  7. SSekouB

    Very quick survey for people with ME/CFS

    Answers: Yes No No
  8. SSekouB

    So You Think Your Genetic Info Is Protected? Uhhhhh.....Not So Fast ......

    Interesting, but not surprising.
  9. SSekouB

    Tips for Air Travel?

    Say..., Does anyone have any helpful tips on air travel that you’ve found reduces likelihood of suffering from ME symptoms? In particular — nausea, internal jitters, extremes in temperature sensitivity, crashing for a month when it’s all over? Anything? Anyone?
  10. SSekouB

    ME/CFS Specialists in Seattle, WA State

    Thank you so much. This is extremely helpful, not to mention encouraging. I’ve given up hope of finding a “specialist” in the true sense of the word who is local, but a doctor who is sympathetic to the disease and willing to admit he is no expert, is often just as valuable. I appreciate the...
  11. SSekouB

    ME/CFS Specialists in Seattle, WA State

    Thank you, Mary. I appreciate that very much.
  12. SSekouB

    ME/CFS Specialists in Seattle, WA State

    Desperate to find anyone who can even point me in the right direction... Diagnosed with ME, but told frankly by my Primary that I need to find someone who specializes in the disease. He admitted that they do not, and that what help or support they can give is “embarrassingly limited”. He said he...
  13. SSekouB

    I feel like giving up on life

    I'm new to these boards and this forum and, granted, I didn't read through every reply to your post... But, is it breaking with protocol or decorum to encourage you not to take your life? I see lots of recommendations for tests, and vitamins, and a whole lotta acronyms, but I don't see anyone...
  14. SSekouB

    My experience of 'Fatigue'

    This describes me almost to the letter. Yes, I'm tired, and not sleeping as well as I'd like, but the fatigue that comes from mental "work" leaves me more exhausted than if I ran a 5 miles. It, literally, feels like my brain is bruised. Like it hurts. I get odd, achy pains that seem to come from...
  15. SSekouB

    Comment by 'SSekouB' in 'So much more'

    Brilliant. You are a very gifted writer, a pleasure to read. You appear to be grappling with big universal/universe questions that so many of us have asked, or are still asking. I've draw so much comfort from the promise of a time very soon, when an earthly government will bring about permanent...
    • SSekouB
    • Blog entry comment