• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. B

    XMRV infection rate points to cofactor not sole cause

    All the studies to date are looking in blood, this may well not be the best place to look and biopsy's may show a clearer picture.
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    Lightning Process to be Evaluated in Research Study on Children

    NSPCC To Investigate Complaints Regarding SMILE/Lightning Process Medical Research on Children with M.E. http://networkedblogs.com/87U9K
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    WPI UK XMRV testing/study

    As Dr Mikovits is presenting an abstract of the UK study on Wednesday at the workshop, would any body care to speculate on the total % of XMRV MLVs positives from the UK study? Perhaps Dr Mikovits could post Professor Wessely a nice postcard from Maryland, USA to Kings College, London kindly...
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    The Scottish Good Practice Statement on ME-CFS is online now.

    Initial response of the ME Association to the new Scottish Good Practice Statement on ME/CFS http://www.meassociation.org.uk/index.php?option=com_content&view=article&id=1394:initial-response-of-the-me-association-to-the-new-scottish-good-practice-statement-on-mecfs&catid=30:news&Itemid=161
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    The Scottish Good Practice Statement on ME-CFS is online now.

    The Scottish Good Practice Statement on ME-CFS http://www.show.scot.nhs.uk/GoodPracticeStatementonME-CFSforGeneralPractitioners.aspx
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    XMRV, De Meirleir and Van der Meer on Dutch television tonight 8/30

    Thank you so much guys for your fantastic transcripts and interpretation of what was said tonight. Wishing you all good health from England :)
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    Lightning Process to be Evaluated in Research Study on Children

    Thank you Suzy deeply, for your unrelenting efforts on this :winking:
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    Have You Tried GET/GAT or Exercise on Prescription?

    http://www.afme.org.uk/news.asp?newsid=875 This link will take you directly to the survey :winking:
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    The Optimum Health Clinic, London

    I would just like to add that The Optimum Health Clinic charge a ridiculous and extortionate amount for nutritional advice, 60 for a 30mins phone call? according to a friend that briefly tried their services! She is still in a really bad relapse after being suckered into trying the LP and it...
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    Reasons for CDC deplorable conduct

    Is the correct answer!!!
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    Doctors Mc.Clure & Kaye respond to Annette Whittemore in "Expert-Reviews.com"

    How many UK patients have the WPI tested to date and what sort of positive % are holding up TGOP?
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    FDA/NIH Paper will be published

    Wow! Thanks for the news Mindy :)
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    WPI UK XMRV testing/study

    The news is just that they are cracking on with the blood draws that's all guys.
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    Q and A with CDC SCIENTISTS

    1996 Primetime news interview following Osler's Web publication Interviews by Nancy Snyderman with Hillary Johnson, author of Osler's Web; Dr. Steven Straus, NIH; Elaine DeFreitas, who ... See more discovered evidence of a new retrovirus, which the gov't ignored and then published a negative...
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    FDA and NIH confirm WPI XMRV findings (report of leaked presentation)

    :cheeky grin::cheeky grin::cheeky grin::cheeky grin::cheeky grin::cheeky grin::cheeky grin:
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    MRC's relationship with funding biomedical research into ME/CFS.

    http://www.meresearch.org.uk/information/publications/casetoanswer.html "The Medical Research Council: a case to answer? ME Research UK." In May 2003, the Medical Research Council (MRC) announced its “research strategy for CFS/ME”, widely welcomed as the first formal research strategy for the...
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    A New Era In ME/CFS Research -Invest In ME Online Journal

    A New Era In ME/CFS Research -Invest In ME Online Journal http://www.investinme.org/Documents/Journals/Journal%20of%20IiME%20Vol%204%20Issue%201%20Screen.pdf
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    MEA (UK) publish big survey of ME/CFS patients

    Interesting to see how many patients found GET & CBT useless or harmful! :worried:
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    ME awareness week UK news articles .

    From: Professor Malcom Hooper To: letters@guardian.co.uk The Editor The growing understanding of ME shown in the recent article (The trouble with ME 14/05/10) by your medical correspondent, Sarah Boseley, is most welcome. However, there are a number of significant errors and omissions...
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    The FINE Trial. BMJ ARTICLE. Nurse led, home based self help treatment for patients in primary care

    http://www.meassociation.org.uk/index.php?option=com_content&view=article&id=1265:failure-of-fine-trial-comes-as-no-surprise-mea-responds&catid=30:news&Itemid=161 'Failure of FINE trial comes as no surprise' - MEA responds to study results in British Medical Journal Tuesday, 11 May 2010 11:49...
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    *2 new* letters, Myra McClue, Annette Whittemore

    Simon Wessely's CV includes covering up :- ME/CFS Gulf War Syndrome Overhead Pylons cancer link. The Camelford water disaster Mobile phones cancer link
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    The Swedish Study

    Is this the study that you guys are referring to that is funded by ME Reasearch UK? http://www.meresearch.org.uk/research/projects/xmrvsweden.html Independent confirmation of the relationship between XMRV and ME/CFS in Sweden Investigators Prof. Jonas Blomberg and Prof. Carl-Gerhard...
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    The FINE Trial. BMJ ARTICLE. Nurse led, home based self help treatment for patients in primary care

    That is a bit rich of AfME they backed and gave their full support to both the FINE & PACE Trials in the first place!!
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    XMRV testing in the UK: statement from The ME Association

    Dr Shepherd fan club lol :cheeky grin::victory:
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    XMRV testing in the UK: statement from The ME Association

    Dr Shepherd has ME himself and does a hell of allot of work on behalf of the ME community on a voluntary bases. I can't believe anyone on here is knocking him for trying to organise for people based in the UK who have been diagnosed with XMRV already to be retested? I have been in email...
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    WPI UK XMRV testing/study

    The 50 blood samples so far have been taken from people that have been able to get to the Hospital under their own esteem. There are 100 people that are home bound that have not contributed to the study yet that are the severely affected and who will have their blood taken at their bedsides.
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    Response from the National Patient Safety Agency to Complaint about the PACE Trial

    Action For ME's response to Prof Hooper's PACE Trial complaint, unbelievable but what else would you expect from them! http://www.facebook.com/home.php?ref...onforme?ref=ts Wed 16th April 2010 Action for M.E. Professor Hooper has made very serious allegations about the ethical approval and...
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    WPI UK XMRV testing/study

    I went to Ashford Hospital yesterday and gave my blood it should be in Nevada by now on a little vaccation. I will post my results when they come through for any one interested in how much if any XMRV is in the UK amongst the UK ME/CFS population?!
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    Kerr: Parvovirus B19 research

    I saw this posted on The ME Association Facebook page. Note from Charles Shepherd: The disease modifying drugs I was referring to in the BBC radio interview yesterday included antivirals (eg valganciclovir), hormones (low dose cortisone), immunomodulators (eg TNF alpha inhibitors such as...
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    WPI UK XMRV testing/study

    It's bout a 50mile drive from where I am in Kent but I am biting the bullet and taking the pay back for travelling there. I guess the Ed guys UK geography maybe a little out if has invited people from Yorkshire lol?!