• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Q

    Comment by 'Quicksand' in '2010 - the Year in ME/CFS Part I: Overview'

    Hi Cort, I am fairly new to Phoenix Rising. I wanted to share that I am one of twenty people enrolled in a recent XMRV study at Cleveland Clinic. I traveled there in late March for a workup to diagnose CFS. After five+ years of enduring most all of the diagnostic symptoms and not getting...
  2. Q

    Which doctor, preferably in the West?

    Hi there. Did you get your diagnosis? I am searching for a good faculty to do work up and provide diagnosis. After seven+ years chasing this locally, I am ready to travel anywhere in the US. My PCP is driving me nuts and wearing me out with pointless visits. She spent two appts explaining that i...