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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. stevenhorr

    Nicotine protects against neurodegeneration (activated microglia)

    I know this thread has been dead for awhile, but it is of great interest to me. I have suffered from post-exertional malaise for about 14 years now. Oddly, the only time these symptoms have almost entirely gone away is when I worked a physical labour job AND smoked cigarettes. As soon as I quit...
  2. stevenhorr

    Life Extension says it's been proven diabetics have mitochondrial deficiency

    FWIW, I have had terrible post-exertional symptoms for about 15 years, and 5.5 years ago, I was diagnosed with adult onset Type 1 diabetes. I'm not sure what the link is, but I strongly suspect there is one, in my case. For those of you who don't know, Type 1 has an autoimmune causation, where...
  3. stevenhorr

    How long do your PEM setbacks last?

    My PEM symptoms seem to start about 2-4 hours after any exertion, and peak around the 24 hour mark. I usually feel a marked improvement 1 or 2 days after that... the fog lifts. It lasts about 3-4 days maximum.
  4. stevenhorr

    EBV, mono, diabetes?

    Thanks, everybody, for the information and kind words. I appreciate the leads and will have to get busy (again) catching up on my learning!
  5. stevenhorr

    EBV, mono, diabetes?

    Hello everyone, I may have posted here many years ago, but have become so frustrated after years of diligent investigating that I just learned to live with my symptoms. However, my health has taken a turn for the worse. I started seeing a CFS specialist at last, and while she said I should...