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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. G

    could this be a Parasite? (warning - Picture enclosed)

    my mistake, i will change the title. I am getting a new test in a lab but not for 3/4 weeks so was just seeing if anyone had a guess
  2. G

    could this be a Parasite? (warning - Picture enclosed)

    First I apologise for attaching a picture to this post but needs must! I have chronic constipation (currently being investigated but most likely due to SIBO or an autonomic issue) I have had two stool tests in the last year that indicated no /parasites/eggs (I have heard that they can be pretty...
  3. G

    My Dr says I have CFS but I think I have something else. Thoughts please?

    Wow, this is great. Thanks! I will get reading it as soon as possible!!
  4. G

    My Dr says I have CFS but I think I have something else. Thoughts please?

    Thanks for your reply! I have taken probiotics before but always had a bit of a strange negative reaction to them, which wasn't normal die off, but i only tried two different brands so I think I need to experiment more!!! That would be interesting in regards to reducing PEM though, although the...
  5. G

    My Dr says I have CFS but I think I have something else. Thoughts please?

    Great Idea, Im being a bit dim and trying to work out how to edit the thread title
  6. G

    My Dr says I have CFS but I think I have something else. Thoughts please?

    Thank you
  7. G

    My Dr says I have CFS but I think I have something else. Thoughts please?

    Can I post this on a different forum? or do you mean not at all on PR?
  8. G

    My Dr says I have CFS but I think I have something else. Thoughts please?

    Hi everyone, I have been reading a lot of posts on the forums recently with great interest. I was 'diagnosed' with CFS about 2 years ago by a private doctor I am seeing, but very recently have had positive test results for - EBV - I suspect this is chronic as I had EBV when i was 20 Lymes...