• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Lethargic

    Studies find HHV-7 active in ME, yet ME Drs often don't test for it & Valcyte doesn't work for HHV-7

    This is interested.I had a spinal tap in 2012 after I first because sick and I had a positive pcr to hhv7 in my CSF,Dr put me on Valcyte,I go to Stanford CFS clinic now,nobo no wants to treat with IV therapy.
  2. Lethargic

    Positive PCR for CMV

    Hi I'm new here.I just started Valcyte.Anything I need to know?I took it four years ago for three months following hhv7 encephalitis positive PCR in my csf.My EBV is reactivated IGM positive.But this CMV is newly acquired and Dr has said it's gave me hepatitis because my liver enzymes are...
  3. Lethargic

    How to improve getting up in the morning?

    I try and drink something when I first get up and lay back down.I notice on mornings after I take Ativan at bedtime are easier.