• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. frecklebean

    Doctor doesn't want to give official diagnosis

    @Cheesus Well, neither one of us has come out and said the words ME/CFS. I went to him complaining of extreme fatigue (etc), and he ordered a whole pile of bloodwork, but said "if this comes back clean there's nothing I can do." It WAS clean, so I went back and he said, "honestly, the only...
  2. frecklebean

    Doctor doesn't want to give official diagnosis

    I believe I have suffered from chronic fatigue syndrome for the past seven years, but my doctor doesn't seem to want to diagnose me. Here's my story: When I was 20, I was diagnosed with celiac disease (a diagnosis I also really had to fight for). I had been working in a bakery (front-of-house...