• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

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    Can you get ME/CFS from shock/chronic stress?

    Thank you that's very useful! I will definitely look into these. Best wishes :)
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    Can you get ME/CFS from shock/chronic stress?

    Thanks for your replies 😁
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    Can you get ME/CFS from shock/chronic stress?

    Thanks for your reply. Are we any closer to finding a blood test or cure for Chronic Fatigue Syndrome than say a few years ago?
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    Can you get ME/CFS from shock/chronic stress?

    So the expensive chronic fatigue places that claim they can cure chronic fatigue with programmes that involve psychological things such as CBT could this actually cure the fatigue, but only if your chronic fatigue was caused by stress (not a viral infection) ?
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    Can you get ME/CFS from shock/chronic stress?

    Just wondering if you can get ME/CFS from shock or a big stressful event happening? If not what would this condition be called (bedbound long term severe fatigue following stress)? Thanks
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    Why can't I tolerate medication?

    No, as far as I know I don't have MCS. Thank you for your responses. Its interesting to know that I'm not the only one experiencing these bad reactions to medications!
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    Why can't I tolerate medication?

    Hello. I'm trying to find out why I can't tolerate medication anymore. 5 years ago (when I was 35yrs old) I had chemotherapy for breast cancer. A year before that I was in hospital with severe measles. 5 years on I still have severe fatigue. It's not really normal to have such severe bedbound...
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    My body can't tolerate any medication?

    @Learner1 no I haven't had these tests! I would be interested, but is there any help/treatment or would I be still in the same position I'm in now if the results showed a problem? Thank you @pattismith my thyroid blood tests results were actually normal. I don't have a thyroid problem. I just...
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    My body can't tolerate any medication?

    @rwac my diet is good! I generally drink water not orange juice. The things I have tried that have given me a terrible reaction are: low dose naltroxone, anti-depressants, kefir (home grown probiotic drink), Thyroid drugs, beta blockers and lots of different supplements. The same thing...
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    My body can't tolerate any medication?

    Hello, Since been unwell it seems I have a terrible reaction if I try and take any kind of medication (even supplements). All my symptoms become 100% times worse and it causes terrible pain & weakness everywhere. This is proving a big problem as I can't help any of my symptoms. Just wondering if...
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    Feeling terrible after Probiotics

    I suffer from terrible fatigue with other symptoms and a couple of months ago I decided to try the drink homemade kefir (probiotics). It had an immediate effect of increasing my fatigue and my dizziness and ringing in the ears, pounding heart became 10 times worse. I only took it for a week (I...
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    My doctor won't diagnose me with CFS

    Yes I've literally had everything checked B12, Folate, Thyroid etc etc. No answers!
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    My doctor won't diagnose me with CFS

    Thank you for your replies. Sorry for my slow reply....I'm just so tired! No....I have the acne all through the month. However in the last few days someone has suggested that acne and terrible fatigue can be caused by leaky gut so I'm going to investigate down that route now. Crossed fingers!
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    Did anyone do a trial of thyroid drugs?

    Thanks very much for your reply. I started on about 16mg of nature-throid a day split in half each day. To be honest I don't think I would ever try it again..... the worst 7 weeks ever! So now I'm moving onto trying other things that might be the cause of my chronic fatigue
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    My doctor won't diagnose me with CFS

    Thank you for replying. I haven't noticed any bald patches apart from around the area at the very front (like a receding hairline) Apart from that I notice its just getting a lot thinner generally everywhere and it ends up all over my clothes & floor. Its quite distressing as I only just grew...
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    My doctor won't diagnose me with CFS

    @Hip - Thank you very much for the information. I've been tested for celiac disease and it was negative. My iron levels were also normal (anemia). My thyroid levels were also normal and also just to be sure I trialled some Thyroid drugs which made me so much worse!. I've been tested for lupus...
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    My doctor won't diagnose me with CFS

    How about asking my GP to refer me to an immunologist? Or would that not be a good person to see? I've already seen an endocrinologist.
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    My doctor won't diagnose me with CFS

    Thank you for your replies! I actually live in Bristol in the UK! I have been to see private doctors. I've been to the Breakspear & also a local functional medicine doctor. I had tests done for viruses & Lymes etc. They were all clear. Their only advice really was a supplement regime which...
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    My doctor won't diagnose me with CFS

    Thank you for your replies. Much appreciated. I have changed GP practices. I have also seen different GP's within the practises. None of them do anything. If i knew what kind of specialist I wanted to be referred to I could press for that....but I don't know what to ask for? A neurologist...
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    My doctor won't diagnose me with CFS

    Hello, I would really love to hear some of your opinions on my situation and I hope you can help please. I've had all the standard test done with my GP and they all came back clear so I was referred to my local Chronic Fatigue clinic. I had an appointment with them and they wrote to me and my...
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    Did anyone do a trial of thyroid drugs?

    Sorry to hear the cortef didn't work either. I haven't tried that but not sure if I'd be allowed that as I did a 24hr adrenal test and it was normal. What's your plan to try next?
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    Did anyone do a trial of thyroid drugs?

    Thanks for your reply! I'm glad to know I am not the only one too! I chatted to some people on a thyroid website and they told me not to stop and to increase the dose instead. My gut instinct said no! Literally couldn't cope with it so I stopped. I'm guessing after you stopped taking it you...
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    Did anyone do a trial of thyroid drugs?

    A couple of weeks ago I did a 7 week trial of nature throid drugs. I have severe fatigue. My thyroid blood test results were normal, but only just normal so my doctor allowed me a trial. All it did was make my fatigue so much worse. It gave me much worse heart palpitations, tingling face...
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    ATP Profile Test

    Thanks for your help. Much appreciated.
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    ATP Profile Test

    Thanks for your replies. So if that's the case and I have high copper then I guess I shouldn't take a copper supplement? I'm trying out Dr Myhill's book and it says about taking a copper supplement.
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    ATP Profile Test

    Yes - I saw the hair dye part - however I don't dye my hair ! Bit confused about the copper blocking sites - is this a totally different kind of copper to copper supplements someone can take?
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    ATP Profile Test

    Thank you so much for taking your time to read my test results. I am taking d ribose, Q10 and magnesium injections, so that's good! (along with a number of other supplements too) I've noticed in Dr Myhill's book she says to take manganese & copper supplements if my SODase is low. I know this...
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    ATP Profile Test

    If anyone can help please that would be much appreciated! I have some questions regarding it. Thank you
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    ATP Profile Test

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    ATP Profile Test

    Hello, I'm wondering if there is anyone on here that can interpret my ATP profile test please? I've had it done but not really sure what it all means. If so I will copy/attach it. Many thanks for any help