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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. F

    instant flu-like symptoms instead of PEM

    Thanks for your replies. I did not have orthostatic intolerance neither exercise intolerance on my radar yet and am looking into it. Though I stumbled on "PENE" (Post-Exertional Neuroimmune Exhaustion) which might additionally apply to me. Out of all the symptoms (join paint, ...) the...
  2. F

    instant flu-like symptoms instead of PEM

    Hi, everybody seems to be getting PEM multiple hours *after* activity or even the next day. Well, I don't. I get "P"EM (flu-like symptoms) *instantly* for every moment I keep on going, increasingly. If I was to ride a bike I'd start with almost 0% flu symptoms. * Stage 1: I start getting dry...