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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. 9

    Is it hard to convince docs to give IV saline?

    Yes, of course, That is the first thing anyone tries.
  2. 9

    Is it hard to convince docs to give IV saline?

    I have been on Saline IVs for a few months and they have made the difference between being a non person to low functioning. I hope to improve but it is definitely slow going. I don't believe it is a placebo effect, so for anyone who wishes to try it, I say do so and find a dr who is willing to...
  3. 9

    Is it hard to convince docs to give IV saline?

    Saying IV fluids are a placebo effect is ignorant. I have CFS, Fibro, POTS and a few other things and IV fluids are the only thing that have helped me. Until you suffer with this or truly deal with patients who do, I think you should refrain from being so disrespectful.
  4. 9

    Oxytocin injections anyone?

    Hi Hip :) Ok, so maybe a bit of background would be best first? Diagnosed with: Tenosynovitis, CFS, MCS, insomnia etc at 13yrs Had Glandular Fever age 15, diagnosed with PCOS, chronic migraines, tachycardia/arrhythmia, Costochrondritis, Vulvadynia/Vestibulitis, Fibromyalgia and all the other...
  5. 9

    Oxytocin injections anyone?

    Hi, I know this is an old thread, but in case anyone is considering Oxytocin, I have been using it for a week now with daily subcutaneous injections of 40iu/day + extra 20iu/day when needed for high pain/stress and it has been amazing! It is early days, but it has made a huge difference and the...