• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. C

    Recently diagnosed

    Thanks again all for your response. I am going to ask my doctor about Sjögren's syndrome and see what they suggest. In the U.K. Unfortunately there is very little understanding of what ME is, which can be very frustrating. It can be a very lonely place! I had to leave work early again today...
  2. C

    Recently diagnosed

    Hi all, again thanks for your response! I'm from England, Kent. I've had many tests, from blood tests, 24 heart monitor, echocardiogram. I've had depression for years so know what that is about. After months of continues doctors appointment, treatments, medication, specialists, CBT. I wrote a...
  3. C

    Recently diagnosed

    Thank you everyone for your response! Really helpful! Having a bad day today, woken up with my glands all up, very sore joints and muscles. Does anyone else loose mobility in their hands and arms, I find it hard to lift things and hold things in my hands. I've taken some multi-vitamins this...
  4. C

    Recently diagnosed

    Hi everyone, I've recently been diagnosed with ME Was just wanting some advice on how people cope on a daily basis? How they treat the muscle and joint pains? I have two children, one 6 years and one 11 months. I also work part time as a senior support worker for adults with learning...