• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    have any info on NICE previously saying they weren't updating guidelines due to PACE trial results?

    Is this helpful? https://www.nice.org.uk/guidance/cg53/documents/surveillance-review-proposal
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    #MillionsMissing London 2018 outside BBC Broadcasting House

    Hi, I am helping to organise this event. Please come along if you are able or send shoes or photographs. All the details are in the Event. https://www.facebook.com/events/157457248303755/ I have broken up the text below. Help make ME visible. The time is now. Join #millionsmissing...
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    Has anyone tried Bimuno prebiotic..?

    I give it to my 16 year old who has ME. I've been giving him the powder in a hot drink and also the pastilles which he likes since July 2016. He is much better recently but I can't say what has helped as he is on a range of supplements and probiotics.
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    Sussex ME/CFS

    Hi, my 16 year old son has had ME for two years. He sees Dr Bansal in Surry, (privately as NHS clinics for children are awful). We were given antivirals and a supplement sheet - very similar to Dr Myhills. He also recommends probiotics. For the last year I've been giving him many...