• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. Darach

    Can PEM cause depression?

    It is certainly a major part of it, but then there is the whole area of mitochondria damage and low energy production in cells throughout the body.
  2. Darach

    Can PEM cause depression?

    How many people feel depressed in a low mood or generally feeling blah during PEM? I find I feel really down when PEM is really bad. There are other possible explanations. My worst PEMs are usually triggered by emotional conflicts so I have plenty to feel down about. You could feel down simply...
  3. Darach

    How does MECFS get worse long term?

    There's a lot of research into short term PEM, but is there any work done on what makes MECFS worse long term or how the overall level from mild to moderate to severe? I've come across Jason Leonard's paper which show how fatigue gets worse when people don’t stay within their energy envelope (ie...
  4. Darach

    Energy Envelope and Morning Resting heart Rate

    Some of the advice about using a heart rate monitor talks about measuring the Morning Resting heart Rate (relax for 10 or 15 mins then measure your heart rate over a 10 min period.) A rise of 10% in you minimum means you are in PEM that day. I only have a basic Polar FT1 chest strap monitor...
  5. Darach

    Simon McGrath blogs: Mark Davis finds the strongest evidence yet for ME/CFS immune activation..

  6. Darach

    CFS prevalence is grossly overestimated using Oxford criteria compared to CDC (Fukuda) criteria

    It could be the other way around and the 4 times more women with CFS figure is because too many men with CFS are dismissed as tired workaholics.
  7. Darach

    Differentiating Multiple Sclerosis from Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

    Thanks :)
  8. Darach

    Differentiating Multiple Sclerosis from Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

    Does anyone know anything about the authors, because the journal the paper is published in raises red flags. imedpub is described as a 'Potential, possible, or probable predatory scholarly open-access publishers' in Beall's List https://en.wikipedia.org/wiki/Predatory_open_access_publishing.
  9. Darach

    Prevalence of and risk factors for severe cognitive and sleep symptoms in ME/CFS and MS

    I thought some graphs would be handy to go with the tables: https://simianinthetemple.wordpress.com/2017/07/03/chronic-fatigue-syndrome-cfsme-and-multiple-sclerosis-ms
  10. Darach

    Increased Vulnerability to Pattern-Related Visual Stress in Myalgic Encephalomyelitis

    Here's a link to the study on patterns http://www.meresearch.org.uk/our-research/completed-studies/visual-stress/ which I found via an overview on visual problems @TomKindlon linked to http://www.meresearch.org.uk/news/shifting-focus/ I always hated small fiddly patterns, so I'm not surprised...
  11. Darach

    Angina and CFS/ME: are diuretics and GTN spray counterproductive?

    After being hospitalised with pneumonia, cardiac arrhythmia and soaring BP and heart rate, I am on Warfarin, beta blocker Bisoprolol and the diuretic Furosemide, with a Glyceryl Trinitrate (GTN) spray for angina episodes. (1) While a diuretic was understandable while I had pneumonia, if a...