• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Nemesis

    Migraine variant with CFS symptoms

    How to delete this thread?
  2. Nemesis

    Migraine variant with CFS symptoms

    I wear sunglasses and tanami hat Asprin is not effective the triggers are Heat Light Noise Exercises or going outside Hot foods and hit drinks
  3. Nemesis

    Migraine variant with CFS symptoms

    Thanks I'm quite sure the doctor is good as far as I understood this symptoms are incurable And as for meds I won't take anything without my doctor advice, if there is any suggestion about any meds I will ask the doctor about it, I always do it,searching for researches and treatments and ask the...
  4. Nemesis

    Migraine variant with CFS symptoms

    No I don't a neurosurgery diagnosed me Actually I don't know if it orthostatic intolerance or not I have hypotension and tachycardia when I climb stairs or do exercises and sit in floor Yes I have episodes of migraine headaches and half headache, auditory hallucinations sometimes, vomiting the...
  5. Nemesis

    Migraine variant with CFS symptoms

    I have migraine variant and it cause like symptoms of CFS / ME and pots I have : heat intolerance Orthostatic intolerance Exercises intolerance Hot flashes Hypotension Brain fog, confusion dehydration, can't wear heavy clothes because it trigger hot flashes and hypotension and dehydration...
  6. Nemesis

    Is there any medicine help climbing stairs

    I have dysautonomia Orthostatic Intolerance I can't climb stairs it trigger Tachycardia, hypotension, fatigue then I lie down on bed for 3 - 4 hours if I climb stairs I Take inderal 10 mg imipramine Cinnarizine stugeron Minirin Is there anything else can I take to help climbing stairs Thanks
  7. Nemesis

    No proper medication for Tachycardia

    No Never heard about that Electrolytes drinks help my blood pressure and dehydration
  8. Nemesis

    No proper medication for Tachycardia

    Yes and no there is nothing except for gallstone
  9. Nemesis

    No proper medication for Tachycardia

    My hypotension is triggered with any move, if I climb stairs, outdoor, exercises, movement,,, etc and most of the time i feel thirsty and dehydrated, although drinking still feeling dehydrated then hypotension sometimes hypotension doesn't rise up even with midodrine unless I drink electrolytes...
  10. Nemesis

    No proper medication for Tachycardia

    Yes exactly the main problem hypotension nothing works for it I Take midodrine snd fludrocortisone Is there any other good medicines for hypotension?
  11. Nemesis

    No proper medication for Tachycardia

    Oh no beta blockers very awful for me
  12. Nemesis

    No proper medication for Tachycardia

    May be but he's not pots specialist My heart is healthy the problem is my nervous system
  13. Nemesis

    No proper medication for Tachycardia

    Yes :-\ only if solved, my doctor already told me about desmopressin but not for tachycardia for dehydration, I will try it
  14. Nemesis

    No proper medication for Tachycardia

    Thanks I will see it
  15. Nemesis

    No proper medication for Tachycardia

    I have dysautonomia Hyperadrenergic Postural Orthostatic Tachycardia Syndrome I have hypotension and tachycardia For hypotension i take midodrine for tachycardia I tried verapamil caused hypotension bisoprolol concor, Metoprolol Succinate, inderal, all beta blockers worsened pots symptoms...
  16. Nemesis

    Poll: Has raising the head of your bed helped your OI/POTS/NHM?

    Definitely feel better actually I can't sleep unless my head raised
  17. Nemesis

    Can't I take any medicine for Tachycardia?

    So how to delete the thread?
  18. Nemesis

    Can't I take any medicine for Tachycardia?

    Yes but my main problem is low blood pressure due to blood vessels dilation, yes I see Cardiologist
  19. Nemesis

    Temporary paralysis I need your Insights

    Yes
  20. Nemesis

    Temporary paralysis I need your Insights

    My hemeglebic migraine was sever and cause me paralyzing and brain fog make me like drunk, it's gone suddenly but gradually after that my pots appeared
  21. Nemesis

    Can't I take any medicine for Tachycardia?

    Thanks you all I love this site it very helpful and supportive I live in Egypt my country is not familiar with this disease nor there are any specialist, so I rely heavily on electronic consulting beside my Cardiologist thanks all
  22. Nemesis

    Can't I take any medicine for Tachycardia?

    Dr Frank j pearl suggested that I ask doctor about Ivabradine
  23. Nemesis

    Can't I take any medicine for Tachycardia?

    Ingredient Strength Standardized Ginseng Extract G115 40mg Dimethyleaminoethanol bitartrate 26mg Vitamin A 4000IU Vitamin B1 2mg Vitamin B2 2mg Vitamin B6 1mg Vitamin B12 1mcg Vitamin C 60mg Vitamin D 400IU Vitamin E 10mg Nicotinamide 15mg Calcium Pantothenate...
  24. Nemesis

    Can't I take any medicine for Tachycardia?

    http://www.pharmaguide.org/geriatric-pharmaton.html
  25. Nemesis

    Can't I take any medicine for Tachycardia?

    I take vitamins, is that will stop Palpitations?
  26. Nemesis

    Can't I take any medicine for Tachycardia?

    Hi everyone I have pots with vasomotor instability, I took Propranolol, sotalol, Bisoprolol, verapamil, for my tachycardia at low dosage, all of it caused me blood vessels dilation and hypotension, my doctor said that I can't take any tachycardia medication as it will dilate my blood vessels...
  27. Nemesis

    Temporary paralysis I need your Insights

    Strange thing that after my pots my hemeglebic migraine completely gone just migraine without paralyzing, my migraine decreased don't know how or why, well generally white light is trigger my migraine more than yellow lights but if yellow light glare it will trigger migraine , well for more...
  28. Nemesis

    Photophobia/Light Sensitivity

    Dark Brown polarized sunglasses is perfect as it decrease glare change white color
  29. Nemesis

    Photophobia/Light Sensitivity

    I have extremely light sensitivity and white color or any bright color sensitivity it makes my heart rate go crazy speed, migrain sometimes temporary blindness or see light flash, hot flashes and hypotension doctor said that it because of migraine and pots
  30. Nemesis

    Cold feet and hands?

    I had this nadty problem after taking bisoprolol because bisoprolol dilated my blood vessels, so blood circulation affected