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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. E

    Flu vaccine and ME/CFS - MEA info leaflet for 2017 - 2018 vaccine

    The trouble with that is that online polls are self selecting and usually aren't very representative. They tend to be answered either by people who have had an especially good or bad reaction or those who have a particular agenda.
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    Complete Symptom Relief and CFS Remission Since Starting Nitric Oxide Supplement

    Viagra is another .NO donor - anyone tried that?
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    Petition: Opposing MEGA

    The rather obvious difference is that no-one is proposing the cancer is a somatoform illness. There are still people proposing that for CFS/ME and being taken seriously. Having a psychiatrist on the team who can say "I've looked at the biomedical evidence and it's definitely not a somatoform...
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    Perrin/lymph drainage/massage: makes sense or not?

    Looks like he's basically repackaged manual lyphatic drainage, stuck his name in front of it and is now charging through the nose for it. Personally I would trust any diagnosis or treatment (at least non musculoskeletal treatment) from an osteopath about as far as I could comfortably spit a rat.
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    MEGA research for M.E./CFS: White & Crawley listed as involved

    I agree with you; I think far more dangerous would be a backlash against this project which runs the risk of putting good researchers off the area. It's tough getting funding for research, especially big basic science projects like this (even more so now we've lost the E.U. funding stream) so to...