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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. InChristAlone

    Need for Quietness and Solitude - are these typical CFS/ME symptoms?

    Over-stimulation is totally normal for me. My brain kind of just overloads and my body is like, "oh no no no, you need to stop." A lot of different things can over stimulate my brain- talking for long periods of time, listening to others talk, trying to multitask, etc. Honestly, it all really...
  2. InChristAlone

    Can I ask you all for a favor?

    It's alright, Willow. I don't need it anymore.
  3. InChristAlone

    Can I ask you all for a favor?

    Hello everyone! I have a project that I need to do for school, and was wondering if you all could help me? I need two people to take this online reaction time test. Here is the link... http://getyourwebsitehere.com/jswb/rttest01.html Once you've taken it, can you post your results here? All...
  4. InChristAlone

    If You Only Just Had Enough Faith...

    @LisaGoddard I think you're so right. Staying in that mindset of, "Yes, God can heal me any day now!" and "I am at peace with my circumstances" is difficult. Lord willing, we all come to place where we can say, "I'm 'okay' with this, but I still expect God to move mountains." I think it's that...
  5. InChristAlone

    Blessings in the Midst of Suffering

    His grace is everywhere! And I so don't deserve it. Thank you for sharing your story! You just wait, the abbreviation for I love you will be popping up in my life now too. :)
  6. InChristAlone

    If You Only Just Had Enough Faith...

    I'm sure that many of us have heard that statement, or a variant of that statement, during our CFS/ME journey. My question for you all is, how do you handle it? I do not discount that faith can heal someone, by opening the door for God to move in a persons life. But what happens when God...
  7. InChristAlone

    Chit Chat

    Hello Hugocfs! So glad to hear that you were able to attend Church finally! I went through a period right after I became ill where Church just wasn't going to happen. However, slowly, I was able to attend regularly again. I hope you will be able to as well!
  8. InChristAlone

    Urinary Problems

    Thank you for the advice! However, I had an ultra sound done after my first visit with the urologist, and he said that everything looked normal.
  9. InChristAlone

    Chit Chat

    Awe, that's so nice Lisa! I'm sure your mother appreciates the thought very much!
  10. InChristAlone

    Change Tilt Table Because of Period??

    Hey, no worries. I actually just say your post the day I asked how your TT went? I was actually going to respond to your initial post, but when I saw it was written awhile ago, I decided to ask how it went. A Tilt Table Test really is easy, all you do is just "stand" there while strapped to a...
  11. InChristAlone

    Chit Chat

    Thank you for that verse Gloria! It's such a good one! Willow, I enjoy watching the birds as well. They're just so cute! Especially the little puffy snow birds :D
  12. InChristAlone

    Chit Chat

    Cool! What do you do with the leaves once you've collected them?
  13. InChristAlone

    Headaches.

    While I don't get headaches every single day, I do often go through periods where my headaches will be more frequent. For example, I went recently without having any headaches for a week or so, which is completely unusual for me. However, there are times where I could have three or four...
  14. InChristAlone

    Urinary Problems

    Yes, I can get a second opinion, and would definitely like to. Several of the tests mentioned in that article I've had done, but not all of them. I'll have to read the article in more detail later; thank you for it!
  15. InChristAlone

    Chit Chat

    Oh yes! This weather is just lovely! All the changing colors are just beautiful! God really is quite the artist!
  16. InChristAlone

    What keeps you holding on.........

    Jesus Christ. <3 Honestly, it took a lot of searching during the first months of my illness. Honestly, I had no idea why this was happening to me, and it wasn't cool. I went from being like "Okay, I can deal with this" to "*sobbing* I don't understand!" And while I still don't understand, I've...
  17. InChristAlone

    Urinary Problems

    Lol! Yeah, and the symptoms I am having don't seem to constitute an overactive bladder. I've been tested over and over for an infection, and the last test showed that there was no sign of infection. My thought, is that my actual bladder is weakened and is having issues getting the urine out in...
  18. InChristAlone

    Urinary Problems

    I think I've heard about cranberry juice for pain as well. That's something I'll have to look into, thanks!
  19. InChristAlone

    Urinary Problems

    Thanks for your response, Iansbergen! For me, it's not really a serious problem in the sense that it's medically serious (like life threatening). It's just more of a serious problem because it can be rather annoying. Like, I don't really want to go to the bathroom a couple times in a row. I've...
  20. InChristAlone

    Chit Chat

    Sometimes it good to get away from focusing on our CFS/ME. Thought it would be nice to have a thread where we can come and just talk! So, how is everyone?
  21. InChristAlone

    Urinary Problems

    About a year or so ago, I came down with an incredibly bad bladder infection (UTI). Went to the doctor and he gave me medicine for it, and thank God, it went away. However, the symptoms started to return, so I was treated again. And again. While the symptoms were not as bad as the first time...
  22. InChristAlone

    Short Term and Long Term Memory

    I know what you mean. I've had CFS/ME for almost 3 years now, and in the beginning, my inability to think was beyond anything I experienced before. It was actually quite scary, as I said that it was like I was getting all the symptoms of old age. Praise the Lord, I only had trouble...
  23. InChristAlone

    Short Term and Long Term Memory

    Hello everyone! Forgive me if this has already been posted/talked about, but I thought it might be interesting to bring up. Some days, and more recently than not, I find myself having difficulty remembering something that someone just told me. For example, my Mom might ask me to grab the...
  24. InChristAlone

    Do you find some types of thinking harder than others?

    Interesting question, but a great one to discuss! I found it incredibly interesting that you mentioned being able to speak easier than reflecting on what you're saying. That is the complete opposite for me! On a really bad day, or when I've over exerted myself, speaking in a coherent way becomes...
  25. InChristAlone

    More improvement!

    What a blessing! It's truly wonderful to hear when someone is having improvement, even if it's just a little bit. As for myself, I'm actually getting worse...but I'm counting on Jesus to help me get through everything. I remember one of the first times I walked through a store by myself. I was...
  26. InChristAlone

    Life as a Student with ME/CFS

    I would definitely recommend going to see a specialist about your CFS/ME, just to make sure that is what you have. Especially because if it is something else that can be treated, you won't have to suffer longer than you have to. (I'm not a doctor, just my opinion) Anyway...considered yourself...
  27. InChristAlone

    Going upstairs

    Upstairs works for me; though I don't think I've ever tried sliding up backwards. What a funny thing that would look like! :D
  28. InChristAlone

    What Kind of Pain do you Experience?

    This was definitely one of greatest shifts in pain that I had when I got CFS. Normally, my headaches were minimal, but when I became ill, they shifted to more intense migraines. So I can definitely relate to this. ***** I find it interesting that you all talk about having a pain when you have...
  29. InChristAlone

    What Kind of Pain do you Experience?

    Pain. Many of us have it in some form or another, and sometimes it gets beyond discouraging. That's why I thought it might be a nice idea to compare our pain, to see who experiences what and how we can all relate to each other. To know that someone else understands your pain can be of great...