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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. goodr189

    Looking for some education around my mutations

    Can you provide some steps you have taken to address the CBS mutation?
  2. goodr189

    Should I be worried about my CTH mutation?

    rs1021737(T;T) The above CTH mutation states I have "significantly higher plasma total homocysteine concentration". I also have some hetero MTHFR mutations. My lab results a few weeks ago put my homocysteine plasma levels at 12.2 with the range of the lab being 0.0-15.0 umol/L. Is 12.2 too...
  3. goodr189

    Looking for some education around my mutations

    Thanks for the in-depth responses Valentijn. It's good to get some valuable feedback around what seems to be a lot of misinformation.
  4. goodr189

    Looking for some education around my mutations

    Curious to see why you say that. When looking into CBS C699T +/+ I noticed that sulfur foods cause a lot of symptoms. Dr Amy Yasko has also indicated that this mutation causes problems with high sulfur and ammonia in the body. I am asthmatic and also allergic to sulfa drugs so I'm not sure if...
  5. goodr189

    Looking for some education around my mutations

    I got the following homozygous mutations: VDR Taq MAO-A R297R CBS C699T and the following heterozygous MTHFR mutations: MTHFR C677T MTHFR A1298C Can anybody lend me their brain in how to handle this cluster f***? Due to the bad combo hetero MTHFR I should have high homocysteine but since...