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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. C

    drugs bad effect to liver, kidney, etc

    I have read on liver disease/damage because I suspect that liver damage is behind my CFS.Not everyone gets a toxic reaction to the same medication.It can even depend on whether you break it down faster(if the metabolite is more toxic you are at greater risk for toxic reaction)or slowly.If you...
  2. C

    I can have a psychiatric origin?

    Did you look into the side effects that those antidepressants are known to cause?Have you googled the names of those medications+liver damage or hepatotoxicity?(particularly advisable if nausea is among your symptoms).How about damage to the peripheral nervous system?There are...
  3. C

    Nausea and Today's A&E experience

    I had a look and there is information that links avelox to liver damage.What might not be consistent is that you got gastro issues weeks after stopping the medication.I was experiencing nausea,anorexia and malaise while taking the medication that I suspect damaged my liver and caused my CFS...
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    Cerebral atrophy

    I discovered a few months ago that i have celebral atrophy in the cortical and cerebellar areas.I am 50 years old and I have had CFS since 1991.I also have headaches.In the past few years I have been experiencing a lot of pressure in an area in the right hemisphere of the brain and difficulty in...
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    Hypoxen - Mitochondrial Respiration Inhibitor?

    Athletes need to reach the peak of their performance at competitions and they take insane risks in order to do that(they are not required to perform at that level all the time).I have heard that cyclists had to walk in the corridors in their hotels throughout the night to prevent their blood...
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    Hypoxen - Mitochondrial Respiration Inhibitor?

    I do not understand chemistry but I get the impression that it might have the opposite of the desired effect,that it might further reduce the body's ability to produce energy.Athletes train in as adverse conditions as possible (eg high altitude)so that when they compete in normal conditions they...
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    Intolerance to meds since CFS?

    I had a severe reaction to antibiotics years before getting CFS and I suspect that my CFS is cholestatic liver damage caused by contraceptic steroids the symptoms of which can be mild:nausea,anorexia,malaise.The onset was gradual in my case too.Except for medication are you intolerant to other...
  8. C

    B12 not getting into cells/serum levels high or ok

    Hi Natalija.I was diagnosed with CFS in 1991 and I suspect that my illness is undiagnosed liver disease.Recently I had medical tests done and it turns out I have brain atrophy and anaemia.I have been looking into my symptoms and my results myself since it takes a long time to see a doctor and...
  9. C

    Connection aluminium, folate, magnesium, iodine, b12

    I googled allergy aluminum and there are sites regarding this topic as well as hypersensitivity to metals.Maybe you can check if your symptoms are consistent with allergy or hypersensitivity.
  10. C

    Treatment of HHV6 in Canada

    I don't know about health care in Canada,I just wanted to give you 2 references from medical journals the one about HHV6 and meningoencephalitis and the other about herpes viruses and the liver.If you google HHV6 maybe more conditions will come up. Birnbaum T,Padovan CS et al Severe...
  11. C

    Liver function test abnormalities

    I have been arguing that there are CFSsufferers with undiagnosed liver disease(blood tests are unreliable in order to eliminate liver disease/damage-I can provide quotes from medical journals on the subject).It seems that even those who should be getting the attention of hepatologists are not...
  12. C

    update: Good news re granddaughter and cervical cancer!

    I ll pray and light a candle for Jessica.I wish her and the rest of the family the best.
  13. C

    L-tyrosine side effects - smelly urine

    I just googled sulphur smell in urine.A number of sites came up and it seems that other people have the same question.A possible cause of sulphur smell in urine seems to be foods such as onion,garlic,fish and asparagus!
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    L-tyrosine side effects - smelly urine

    I was only talking about tyrosine and the central nervous system where tyrosine is the ''precursor''to dopamine(and noradrenaline which as far as I remember is synthesized out of dopamine).I don't know how tyrosine is processed in other organs or via other metabolic pathways.I googled tyrosine...
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    hypocholesterolemia treatment

    Have you and your doctor looked at all the possible causes?According to Wikipedia possible causes of hypocholesterolemia can be hypothyroidism,malabsorption,betalipoproteinamia,hypobetalipoproteinamia(the last 2 are rare and you would have below 50 mg/dl),manganese deficiency,Smith-Lemli-Opitz...
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    SIBO, Cholestyramine, Bile Acids And a Nervous System Gone Haywire

    Hepatic encephalopathy is only useful in establishing a link between severe liver damage and brain damage but it only applies in specific conditions(hemorrhage,coma,porto caval shunt).I have photocopies from medical books in which it is written that cholestasis affects the part of the liver...
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    SIBO, Cholestyramine, Bile Acids And a Nervous System Gone Haywire

    I am sending you 2 quotes from medical journals regarding the unreliability of liver function tests.I hope that your doctor will take them into consideration. a)Ricketts,W E Pathological liver with minimal or no change in liver tests Am J Med Sci 1951;Mar 22:(3):291''Liver tests within normal...
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    Chemical Intolerance in Primary Care Settings: Prevalence, Comorbidity, and Outcomes

    The study "A prelimilary investigation of chlorinated hydrocarbons and chronic fatigue syndrome''Med J Aust 1995;163:294-297 found that CFS patients had on average higher serum organochlorine level than the control group.The authors also mention that 3 patients had considerably higher...
  19. C

    Indoor Volatile Organic Compounds and Chemical Sensitivity Reactions

    A few weeks ago there was a programme on DW TV(german international channel) about a woman who became ill because of exposure to printer particles in her workplace.I wasn't able to find the documentary on their site ,I tried googling ''chemical sensitivity printer particles'' and a few articles...
  20. C

    illness & sexuality

    You and your husband care about each other and about your relationship so hopefully you can work out everything.The main thing is that you care and that you found each other.
  21. C

    Lyme and Its Connection to Thyroid / Adrenal Problems

    I read the article that you referenced.Dana mentioned that her son was treated with amoxicillin.According to this article http://ncbi.nlm.nih.gov/pmc/articles/PMC3304646( A case of amoxicillin-induced hepatocellular liver injury with bile-duct damage) amoxicillin causes liver damage to 0.3 out...
  22. C

    B2 I love you!

    I didn't get to look at the study that you quote yet.I just wanted to mention that the enzymes that break down chemicals in the liver contain heme.I quote from Wikipedia''The active site of cytochrome P450 contains a heme-iron center.The iron is tethered to the protein via a cysteine thiolate...
  23. C

    High ammonia - with gut dysbiosis

    I google searched high ammonia levels, liver disease comes up every time and in one site there's also kidney failure,Reye syndrome and rare genetic disorder of the urea cycle.There's also talk of ammonia affecting or being toxic to the brain.If your doctors didn't refer you to specialists for...
  24. C

    Friedberg et al: Efficacy of two delivery modes of behavioral self-management in severe CFS

    I cannot deal with that stuff myself but I think that it's a good idea that some of the others keep track of the nonsense.I had looked at all the titles of articles on CFS on PubMed from 1993 to January 1997 and out of 300 or so articles only about 10 were actual science,but I have been trying...
  25. C

    "The Medical Medium" What’s Potentially at the Root of Medical Mysteries (EBV)

    I read the rest of the article (I probably didn't understand all the mechanisms described or referred to) but there is more to it than what I quoted.I would like to add that antibiotics (and other medications, contraceptive and anabolic steroids) can be very toxic to the liver and the...
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    "The Medical Medium" What’s Potentially at the Root of Medical Mysteries (EBV)

    I didn't try to cut and paste(although I 've been successful at it a couple of times recently).I was able to find the entire article http://ajp.amjpathol.org/article/S0002-9440(10)62684-3/pdfand even though I triplechecked just in case I didn't get it right I noted the title of the article...
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    "The Medical Medium" What’s Potentially at the Root of Medical Mysteries (EBV)

    I am not sure if you want to know why I looked at liver diseases in general or why I looked at EBV and the liver.If I don't answer your question to your satisfaction please ask again. I was diagnosed as having CFS in 1993 in Australia.I didn't have a medical or scientific background so I...
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    "The Medical Medium" What’s Potentially at the Root of Medical Mysteries (EBV)

    Are you guys familiar with the possibility of getting liver damage because of EBV?I quote from David H Adams Stefan G Hubscher Am J Pathol Apr 2006;168(4):1057-1059.I only have this abstract"The liver can be affected as part of a generalized host infection with viruses that primarily target...
  29. C

    Scientists discover 17 genetic variations that raise risk of depression

    I haven't read any research into genetics but I have read a little bit about neurotransmitters.When scientists look at genes do they know which neurotransmitter or which receptor is affected and how when someone has a polymorphism?The SNPs between genes is it clear whether they play a role or...