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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    My Prof De Meirleir patient experience...

    Thank's Dan. It is important that all kinds of experiences get out there - very helpful to see all sides before making an decision.
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    My Prof De Meirleir patient experience...

    Thanks for your answer, Tony. It helps seeing things from another perspective. :) I found an old Cheney article on Prohealth: http://www.prohealth.com/library/showarticle.cfm?libid=8021 Seems like it is connected to neurotoxins Maybe KDM focuses on this drug because of his recent...
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    My Prof De Meirleir patient experience...

    Thanks for your answer Tony. Yes, it is really wonderful to sleep normally again :-) The mobilizing feeling is also as good as gone in my body/brain. I relax well, and fall asleep immediately. It must be something else dr. DM has in mind... He is a great person, and a fantastic doctor, but I...
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    My Prof De Meirleir patient experience...

    Does anybody know any other reasons for taking Rivotril than sleep and neurological attacks? I thought these two things were the reason why dr. De Meirleir put Rivotril on my treatment plan... I am hesitating quite a bit on possibly habitual drugs and drugs with heavy side effects, so I...
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    Are You Hyperventilating?

    Thanks for your comments Susan. Interesting to read your thoughts around this. The strange thing is that I have been a nose breather my entire life, and I have been doing Pranyama breathing for years Still, it seems like the body is living its own life when getting fatigued. I know that dr...
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    Are You Hyperventilating?

    Since I first read this, I have been paying attention to my breathing. I discovered that shortness of breath and trouble holding the breath appeared at the same time as I felt restless and tense. I tried breathing into a bag, and to my big surprise I immediately felt completely relaxed. I...
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    Anybody heard of VIP (Vasoactive Intestinal Peptide)?

    I have never heard the name earlier... But it made me think of something Dr. De Meirleir mentioned He mentioned once that there is a nasal spray that he can use as a last step on patients if there still are great symptoms when all the test results are ok after long-time treatments. As far as...
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    Dr. DeMierlier Annoucement: H2S

    Presentation notes from dr. De Meirleirs presentation at a Conference prior to the ESME-think thank (probably about the same as the one held in UK a couple of weeks earlier): http://www.me-forening.no/index.php?option=com_docman&task=doc_download&gid=115...