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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. S

    Hormone Pellets

    Thanks for the feedback, Minkeygirl. I had a good experience on BHRT, but that protocol stopped working as I got closer to menopause (and also had cost issues). I'm intrigued by the pellets, but am also concerned that if a person has a negative reaction, I don't currently think they can be...
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    Hormone Pellets

    Has anyone had any experience with injected hormone pellets and CFS? I've had viral onset CFS with hormonal complications for 30 years. Several years ago, I found bioidential hormone replacement to be a useful tool to manage the hormone complications (low progesterone being the biggest one)...
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    Use whole body vibration exercise for weight loss, bone density and muscle building

    I am still using it. I'm doing 10 minutes a day every other day. I recently started working up to a few squats and push-ups while on the machine and so far so good. I am having an overall good experience with it but I am very cautious with it and don't use it on days I know I will need every...
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    Use whole body vibration exercise for weight loss, bone density and muscle building

    I've heard that as well but I don't know if it's true or if that's just an idea promoted by those who sell the most expensive machines.
  5. S

    Use whole body vibration exercise for weight loss, bone density and muscle building

    I am still using it, and my use has correlated with a distinct improvement in overall energy and endurance. I can't say for sure these improvements are due to the machine, but I haven't made any other changes in my treatment program during the same time and am now doing better than I have been...
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    Use whole body vibration exercise for weight loss, bone density and muscle building

    Thanks for the comments, Sushi and ukxmrv. I think I may have overdone it myself - I started with 5 minutes a day and felt pretty good, so I went up to 10 probably sooner than I should have. I'm definitely more tired than usual after 3 days of that. But I also feel more alert and clear headed...
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    Use whole body vibration exercise for weight loss, bone density and muscle building

    I'm always suspicious of any product that claims to be able to address so many different issues. But it does appear there is some real science behind at least some of the claims, and I'm interested in this because I do have osteopenia and am mostly sedentary due to CFS. I've been trying one...
  8. S

    Low dose Naltrexone

    I've been on 3 mg LDN for a year and a half now. I was reading in Reviving the Broken Marionette that LDN has been reported to significantly reduce CFS/ME "crashes." I hadn't heard that before, but realized with a start that it appears to be true for me. I have been working nearly full time...
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    Low dose Naltrexone

    In my girlfriend's case, it stayed about the same. In my case, it was significantly worse in my first follow up test, but we don't think it was because of the LDN. I was also on AMP (adenosine monophospate), a precursor to ATP that my internist had put me on as an experiment to see if it...
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    Low dose Naltrexone

    Both I and another friend of mine who has been on LDN had before and after NK function tests. There was no improvement in NK function for either of us. For me, though, LDN has resulted in measurable improvements in my mood upon awakening, so I am continuing to take it despite the fact that...
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    Dr. Teitelbaum's Fibro & Fatigue Center Doctor Causes HEART ATTACK

    Another FFC doctor has just been disciplined: (Via Quackwatch) "Fibromyalgia/chronic fatigue "specialist" disciplined. James Edward Stevens, D.O, who practices at the Dallas office of Fibromyalgia & Fatigue Centers (FFC), has been disciplined for "nontherapeutic prescribing." In August...
  12. S

    Low dose Naltrexone

    I have found LDN helpful, though not in the way I hoped. My CFS started with Mono 22 years ago. XMRV status unknown. I have low natural killer cells so wanted to try LDN to see if it would raise them. I started with 1.5 mg and raised to 3 after about 8 days. It did interfere with my sleep...
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    Low dose Naltrexone

    Hi, Jenny, I wish I had more time to look through it for you, but I'm on a deadline at the moment so I can just say this: in the chapter on the immune system and LDN in HIV/AIDS, on p 112, it says: "LDN causes an increase in metenkephalin, which increases levels of Th1 cells and reduces levels...
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    Low dose Naltrexone

    LDN Research You may wish to see if this book might help answer your question: http://www.amazon.com/Promise-Low-Dose-Naltrexone-Therapy/dp/0786437154/ref=sr_1_1?ie=UTF8&s=books&qid=1268662740&sr=1-1 It's an attempt to collect all the research that has thus far been conducted on LDN in...
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    Low dose Naltrexone

    Because naltrexone blocks certain opiate receptors, my understanding is that narcotics taken while under its influence will be ineffective. I read somewhere that there is concern about people being more likely to overdose because of this - since it won't work, people might take more and put...
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    Low dose Naltrexone

    Belmar Pharmacy This is the pharmacy my doc recommended. No idea if they'd take a foreign prescription, but it can't hurt to ask. Customer service is great, their quality is better than anywhere else I've tried, and they're quite affordable - $41 for 90 4.5 mg tabs...
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    Significance of XMRV Cortisol Receptors

    I've had a similar experience, Wayne. Traveling overseas this summer, I doubled my HC for two days and then weaned slowly back down to help me deal with the jet lag. Not only did the extra HC drastically reduce my jet lag problems, I also didn't come down with the nasty flu my husband picked...
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    Significance of XMRV Cortisol Receptors

    HC vs. Prednisone Hi, Athene, I also know a little bit about hydrocortisone. I strongly recommend Jeffries' book as well, though because it is a medical book it's expensive unless you get lucky and can find a rare used copy. The cheapest place to get it is usually from the publisher in...
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    The Gupta Program and XMRV: discussion

    Hormones I'm very curious about Bertiedog's post as I am also on thyroid and cortisol, as well as progesterone, testosterone, DHEA and pregnenolone, and this replacement therapy has been the only thing that has genuinely helped me out of the many things I've tried. I don't want to hijack...
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    The Gupta Program and XMRV: discussion

    Advocate or Alice, can you say more about - or point to - your criticisms of him? This is the first I've seen of this theory. Thanks.
  21. S

    XMRV - Hope and Caution

    Thanks Thank you for the excellent post, Cort. I'm very grateful for all your work on this subject.