• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. J

    Abilify- Stanford Clinic Patients

    What about this TD med—“ By selectively reducing the ability of VMAT2 to load dopamine into synaptic vesicles,[8] the drug reduces overall levels of available dopamine in the synaptic cleft, ideally alleviating the symptoms associated with dopamine hypersensitivity. ”...
  2. J

    Nanoneedle progress

    https://www.healthrising.org/blog/2024/02/11/nanoneedle-chronic-fatigue-me-cfs/ Cort article The Nanoneedle for ME/CFS is Back!
  3. J

    Fantastic overview of causes of joint laxity, blood vessel compression syndromes and how to heal them

    This article is from an anti-vaxxer who posts on Mercola…..
  4. J

    Catalytic Antibodies May Contribute to Demyelination in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    Can we please keep posts relevant to the Jensen/Davis study/article—thanks.
  5. J

    Catalytic Antibodies May Contribute to Demyelination in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    Ron Davis explainer video.
  6. J

    I cyclophosphamide

    How was nausea following your infusion? Thanks.
  7. J

    Any risks i should be aware of taking Sertraline?

    Withdrawal issues from ssris can be very severe.
  8. J

    Anyone Else Find Meditation Greatly Helps Their Condition?

    No
  9. J

    Beth Mazur

    https://x.com/meactnet/status/1738230197043052869?s=46&t=lSzbL37z1zup966UMmMdlw Co-founder of ME action It is with deep sadness that we share with you that we lost one of our heroes and champions of ME yesterday. Beth Mazur passed away after battling ME for 15 years. She was a selfless beacon...
  10. J

    I cyclophosphamide

    Wow you did your own infusion? Did you buy an infusion pump? Over how long a time period did you do the infusion?
  11. J

    What went wrong?

    A lot of pseudoscience nonsense in that thread.
  12. J

    Low dose abilify - UK

    There is an existing Abilify thread here https://forums.phoenixrising.me/threads/abilify-stanford-clinic-patients.62807/ Also there is a very large FB group you can join.
  13. J

    Abilify- Stanford Clinic Patients

    @serafim You are probably better off posting on the FB group—more members there.
  14. J

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome

    No it’s not salubrinal! Salubrinal is not a good pharma candidate. See here. “An EC50 of 15 micromolar is generally considered not good enough for drug development. ” From here https://www.alzforum.org/news/research-news/salubrinal-rescue-new-compound-fights-er-stress It’s Relyvrio—an ALS...
  15. J

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome

    See the thread here https://www.s4me.info/threads/wasf3-disrupts-mitochondrial-respiration-and-may-mediate-exercise-intolerance-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2023-hwang-et-al.34776/page-6
  16. J

    She wrote to a scientist about her fatigue. It inspired a breakthrough. WAPO. Brian Vastag

    https://wapo.st/3Pem0G4
  17. J

    OSTEOPOROSIS AND DRUG CHANGES

    These drugs were discussed at the Stanford meeting. https://drive.google.com/file/d/15J8D-9s2Flin8b5eLxpPuLwFG2mM5eg8/view
  18. J

    OSTEOPOROSIS AND DRUG CHANGES

    OK sorry about this—but the question is did your MECFS symptoms improve while on biphosphonate drugs? The idea is that these drugs might be useful in blocking the itaconate shunt. I don’t know how to insert Tweets any more on here...
  19. J

    OSTEOPOROSIS AND DRUG CHANGES

    Hi, Has anyone here on taken biphosphonate drugs and felt an improvement in their MECFS symptoms? “There are several bisphosphonates to choose from: pills, such as alendronate (Fosamax), ibandronate (Boniva), or risedronate (Actonel, Atelvia), taken daily, weekly, or monthly injections of...
  20. J

    Rexulti and Me/Cfs?

    What is your dosage of vraylar? (Vraylar has a very very long half life).
  21. J

    Rexulti and Me/Cfs?

    Rexulti Abilify and vraylar are all in the same drug class.
  22. J

    Looking for various detox protocols

    No—“Detox” is a pseudoscience. https://www.zmescience.com/science/detox-pseudoscience-04233/ There are no approved treatments for MECFS.
  23. J

    Why i don't think there will be a cure for ME

    FWIW Some people treated with cyclophosphamide have been cured and have returned to work.
  24. J

    Abilify- Stanford Clinic Patients

    Yes sounds like it—can last for months.
  25. J

    What is the best sleep medication for CFS patients?

    Ambien is the same thing as zolpidem
  26. J

    Abilify- Stanford Clinic Patients

    What was your rexulti dose? And how long did you trial it?
  27. J

    Abilify- Stanford Clinic Patients

    Maybe ask him if he was also taking Dulo during the pervious period when he pooped out.
  28. J

    Abilify- Stanford Clinic Patients

    Please note that this person is also taking Duloxetine!! Can anyone who is on Reddit how long he has been on duloxetine and why was he prescribed this?
  29. J

    Tips for Finding Reliable Prescription-Free Online Pharmacies

    This is horrific BS. I would report this person.
  30. J

    Abilify- Stanford Clinic Patients

    Not that I know of.